Pauline Heslop

2025

Learning to Listen to Non-spoken Voices. Including Young People With Intellectual Disabilities Who are Non-speaking as Primary Participants in Qualitative Research

Samways, B. & Heslop, P., 5 Feb 2025, (E-pub ahead of print) In: International Journal of Qualitative Methods. 24, 13 p.

Research output: Contribution to journal › Article (Academic Journal) › peer-review

Open Access

2024

Health and healthcare of people with learning disabilities in the United Kingdom through the COVID-19 pandemic

Hatton, C., Hastings, R., Caton, S., Bradshaw, J., Jahoda, A., Kelly, R., Maguire, R., Oloidi, E., Taggart, L., Todd, S., Abbott, D. W. F., Beyer , S., Cavanagh, D., Gillooly, A., Flynn, S., Gore, N., Heslop, P., Jahoda, A., Marriott, A. & Rawles, J. & 1 others, Scior, K., 1 Jun 2024, In: British Journal of Learning Disabilities. 52, 2, p. 260-271 12 p.

Research output: Contribution to journal › Article (Academic Journal) › peer-review

Open Access

6 Citations (Scopus)

Strategies to prevent or reduce inequalities in specific avoidable causes of death for adults with intellectual disability: a systematic review

Heslop, P. & Lauer, E., 31 Jan 2024, (E-pub ahead of print) In: British Journal of Learning Disabilities. 52, 2, p. 312-349 38 p.

Research output: Contribution to journal › Article (Academic Journal) › peer-review

Open Access

2 Citations (Scopus)

2022

Access to and use of health and social care services for people with learning disabilities during COVID-19: a longitudinal study

Flynn, S., Hatton, C., Hastings, R., Hayden, N., Caton, S., Heslop, P., Jahoda, A., Todd, S., Oloidi, E., Beyer, S., Mulhall, P. & Taggart, L., 22 Mar 2022, In: Tizard Learning Disability Review. 27, 1, p. 57-66 10 p.

Research output: Contribution to journal › Article (Academic Journal) › peer-review

6 Citations (Scopus)

Cancer in deceased adults with intellectual disabilities: English population-based study using linked data from three sources

Heslop, P., Cook, A., Sullivan, B. T., Calkin, R. A., Pollard, J. & Byrne, V., 24 Mar 2022, In: BMJ Open. 12, 3, 11 p., e056974.

Research output: Contribution to journal › Article (Academic Journal) › peer-review

Open Access

File

18 Citations (Scopus)

73 Downloads (Pure)

Digital participation of people with profound and multiple learning disabilities during the Covid-19 pandemic in the UK

Caton, S., Bradshaw, J., Gillooly, A., Hatton, C., Flynn, S., Oloidi, E., Jahoda, A., Maguire, R., Marriott, A. M., Mulhall, P., Taggart, L., Todd, S., Abbott, D. W. F., Beyer , S., Gore, N., Heslop, P., Scior, K. & Hastings, R., 29 Aug 2022, (E-pub ahead of print) In: British Journal of Learning Disabilities. p. 1-12 12 p.

Research output: Contribution to journal › Article (Academic Journal) › peer-review

Open Access

File

10 Citations (Scopus)

129 Downloads (Pure)

Establishing a national mortality review programme for people with intellectual disabilities: the experience in England

Heslop, P., Byrne, V. M., Calkin, R. A., Gielnik, K. T. & Huxor, A. P., Apr 2022, In: Journal of Intellectual Disabilities. 26, 1, p. 264-280 17 p.

Research output: Contribution to journal › Article (Academic Journal) › peer-review

Open Access

File

12 Citations (Scopus)

140 Downloads (Pure)

Online social connections and Internet use among people with intellectual disabilities in the United Kingdom during the COVID-19 pandemic

Caton, S., Hatton, C., Gillooly, A., Oloidi, E., Clarke, L., Bradshaw, J., Flynn, S., Taggart, L., Mulhall, P., Jahoda, A., Maguire, R., Marriott, A., Todd, S., Abbott, D. W. F., Beyer, S., Gore, N., Heslop, P., Scior, K. & Hastings, R., 6 May 2022, (E-pub ahead of print) In: New Media and Society.

Research output: Contribution to journal › Article (Academic Journal) › peer-review

Open Access

File

28 Citations (Scopus)

151 Downloads (Pure)

Self-reported explanations for self-injury by people with intellectual disabilities: a systematic review of qualitative studies

Samways, B., Heslop, P. & Dowling, S. F., 19 Jul 2022, In: International Journal of Developmental Disabilities. 70, 3, p. 382-396 15 p.

Research output: Contribution to journal › Article (Academic Journal) › peer-review

Open Access

6 Citations (Scopus)

2021

Gender and the premature deaths of people with intellectual disabilities: an international expert consultation

Robertson, J., Heslop, P., Lauer, E., Taggart, L. & Hatton, C., Jun 2021, In: Journal of Policy and Practice in Intellectual Disabilities. 15 p.

Research output: Contribution to journal › Article (Academic Journal) › peer-review

Open Access

File

9 Citations (Scopus)

115 Downloads (Pure)

Health and social care access for adults with learning disabilities across the UK during the COVID-19 pandemic in 2020

Flynn, S., Hatton, C., Abbott, D. W. F. & Heslop, P., 1 Sept 2021, (E-pub ahead of print) In: Tizard Learning Disability Review.

Research output: Contribution to journal › Article (Academic Journal) › peer-review

Open Access

File

14 Citations (Scopus)

402 Downloads (Pure)

Prevalence estimation of intellectual disability using national administrative and household survey data: The importance of survey question specificity

McBride, O., Heslop, P., Glover, G., Lawrence, T., Hanna-Trainor, L., Shevlin, M. & Murphy, J., 28 Jan 2021, In: International Journal of Population Data Science. 6, 1, 14 p.

Research output: Contribution to journal › Article (Academic Journal) › peer-review

Open Access

File

20 Citations (Scopus)

77 Downloads (Pure)

The experiences of adults with learning disabilities during the COVID-19 pandemic: qualitative results from Wave 1 of the Coronavirus and people with learning disabilities study

Flynn, S., Caton, S., Gillooly, A., Bradshaw, J., Hastings, R., Hatton, C., Jahoda, A., Mulhall, P., Todd, S., Beyer , S., Taggart, L. & Heslop, P., 30 Nov 2021, In: Learning Disability Review. 26, 4, p. 224-229 9 p.

Research output: Contribution to journal › Article (Academic Journal) › peer-review

Open Access

File

10 Citations (Scopus)

89 Downloads (Pure)

The willingness of UK adults with intellectual disabilities to take COVID-19 vaccines

Hatton, C., Bailey, T., Bradshaw, J., Caton, S., Flynn, S., Gillooly, A., Jahoda, A., Maguire, R., Marriott, A., Mulhall, P., Oloidi, E., Taggart, L., Todd, S., Abbott, D. W. F., Beyer , S., Gore, N., Heslop, P., Scior, K. & Hastings, R. P., 16 Sept 2021, In: Journal of Intellectual Disability Research. 65, 11, p. 949-961 13 p.

Research output: Contribution to journal › Article (Academic Journal) › peer-review

Open Access

File

10 Citations (Scopus)

96 Downloads (Pure)

2020

Mellow Futures – an adapted parenting programme for mothers with learning difficulties in England and Scotland. Professionals’ views on the outcomes

Tarleton, B. & Heslop, P., 18 Sept 2020, (E-pub ahead of print) In: Health and Social Care in the Community. 10 p.

Research output: Contribution to journal › Article (Academic Journal) › peer-review

Open Access

File

263 Downloads (Pure)

2019

Implementing reasonable adjustments for disabled people in healthcare services

Heslop, P., Turner, S., Read, S., Tucker, J., Seaton, S. & Evans, B., 31 Jul 2019, In: Nursing Standard. 34, 8, p. 29-34 6 p.

Research output: Contribution to journal › Article (Academic Journal) › peer-review

Open Access

File

20 Citations (Scopus)

952 Downloads (Pure)

Power in research relationships: engaging mothers with learning difficulties in a parenting programme evaluation

Tarleton, B. & Heslop, P., 5 Aug 2019, In: Qualitative Social Work. p. 1-17 17 p.

Research output: Contribution to journal › Article (Academic Journal) › peer-review

Open Access

File

1 Citation (Scopus)

395 Downloads (Pure)

2018

Being a Disabled Patient: Negotiating the Social Practices of Hospitals in England

Read, S., Williams, V., Heslop, P., Mason-Angelow, V. & Miles, C., Jun 2018, In: Social Inclusion. 6, 2, p. 74-82 9 p.

Research output: Contribution to journal › Article (Academic Journal) › peer-review

Open Access

File

8 Citations (Scopus)

394 Downloads (Pure)

Disabled people’s experiences of accessing reasonable adjustments in hospitals: a qualitative study

Read, S., Heslop, P., Turner, S., Mason-Angelow, V., Tilbury, N., Miles, C. & Hatton, C., Dec 2018, In: BMC Health Services Research. 18, 10 p., 931.

Research output: Contribution to journal › Article (Academic Journal) › peer-review

Open Access

File

15 Citations (Scopus)

753 Downloads (Pure)

Medical Certificates of Cause of Death for people with intellectual disabilities: A systematic literature review

Dunwoodie Stirton, F. & Heslop, P., Aug 2018, In: Journal of Applied Research in Intellectual Disabilities. 31, 5, p. 659-668 10 p.

Research output: Contribution to journal › Article (Academic Journal) › peer-review

Open Access

File

18 Citations (Scopus)

635 Downloads (Pure)

The hospital provision of reasonable adjustments for people with learning disabilities: Findings from Freedom of Information requests

Heslop, P., Read, S. & Dunwoodie Stirton, F., 1 Dec 2018, In: British Journal of Learning Disabilities. 46, 4, p. 258-267 10 p.

Research output: Contribution to journal › Article (Academic Journal) › peer-review

Open Access

File

11 Citations (Scopus)

438 Downloads (Pure)

Understanding disabling barriers: a fruitful partnership between Disability Studies and social practices?

Williams, V., Tarleton, B., Heslop, P., Porter, S., Sass, B., Blue, S., Merchant, W. & Mason-Angelow, V., 7 Feb 2018, In: Disability and Society. 33, 2, p. 157-174 18 p.

Research output: Contribution to journal › Article (Academic Journal) › peer-review

Open Access

File

49 Citations (Scopus)

409 Downloads (Pure)

2017

Mortality in people with intellectual disabilities in England

Glover, G., Williams, R., Heslop, P., Oyinola, J. & Grey, J. M., Jan 2017, In: Journal of Intellectual Disability Research. 61, 1, p. 62–74 13 p.

Research output: Contribution to journal › Article (Academic Journal) › peer-review

Open Access

File

168 Citations (Scopus)

783 Downloads (Pure)

2016

Developing research priorities for palliative care of people with intellectual disabilities in Europe: a consultation process using nominal group technique

Tuffrey-Wijne, I., Wicki, M., Heslop, P., McCarron, M., Todd, S., Oliver, D., De Veer, A., Ahlström, G., Schäper, S., Hynes, G., O'Farrell, J., Adler, J., Riese, F. & Curfs, L., 26 Mar 2016, In: BMC Palliative Care. 15, 1, 11 p., 36.

Research output: Contribution to journal › Article (Academic Journal) › peer-review

Open Access

File

33 Citations (Scopus)

341 Downloads (Pure)

2015

Making a difference - the impact of the Confidential Inquiry into premature deaths of people with learning disabilities

Heslop, P. & Marriott, A., May 2015, In: British Journal of Learning Disabilities. 43, p. 142-149 8 p.

Research output: Contribution to journal › Article (Academic Journal) › peer-review

2 Citations (Scopus)

Mortality in people with intellectual disabilities

Heslop, P., Lauer, E. & Hoghton, M., Sept 2015, In: Journal of Applied Research in Intellectual Disabilities. 28, 5, p. 367-372 6 p.

Research output: Contribution to journal › Article (Academic Journal) › peer-review

Open Access

File

19 Citations (Scopus)

461 Downloads (Pure)

Mortality of people with intellectual disabilities in England: A comparison of data from existing sources

Heslop, P. & Glover, G., Sept 2015, In: Journal of Applied Research in Intellectual Disabilities. 28, 5, p. 414-422

Research output: Contribution to journal › Article (Academic Journal) › peer-review

Open Access

File

51 Citations (Scopus)

668 Downloads (Pure)

2014

Assessment of an incentivised scheme to provide annual health checks in primary care for adults with intellectual disability: a longitudinal cohort study

Buszewicz, M., Welch, C., Horsfall, L., Nazareth, I., Osborn, D., Hassiotis, A., Glover, G., Chauhan, U., Hoghton, M., Cooper, S.-A., Moulster, G., Hithersay, R., Hunter, R., Heslop, P., Courtenay, K. & Strydom, A., Dec 2014, In: Lancet Psychiatry. 1, 7, p. 522-530 9 p.

Research output: Contribution to journal › Article (Academic Journal) › peer-review

57 Citations (Scopus)

Best interests decisions: professional practices in health and social care

Williams, V., Boyle, G., Jepson, M., Swift, P., Williamson, T. & Heslop, P., Jan 2014, In: Health and Social Care in the Community. 22, 1, p. 78-86 9 p.

Research output: Contribution to journal › Article (Academic Journal) › peer-review

19 Citations (Scopus)

Caring for a woman with intellectual disabilities who refuses clinical diagnostic investigations

Heslop, P., Hoghton, M. A., Marriott, A. M., Jepson, M. & Noble, A., Jan 2014, In: BMJ. 348, p. 1-4 4 p.

Research output: Contribution to journal › Article (Academic Journal) › peer-review

3 Citations (Scopus)

Poor adherence to the mental capacity act and premature death

Heslop, P., Blair, P. S., Fleming, P. J., Hoghton, M. A., Marriott, A. M. & Russ, L. S., 1 Nov 2014, In: Journal of Adult Protection. 16, 6, p. 367-376 10 p.

Research output: Contribution to journal › Article (Academic Journal) › peer-review

4 Citations (Scopus)

The Confidential Inquiry into premature deaths of people with learning disabilities: a population-based study

Heslop, P., Blair, P. S., Fleming, P. J., Hoghton, M. A., Marriott, A. M. & Russ, L. S., 8 Mar 2014, In: Lancet. 383, 9920, p. 889–895 7 p., http://dx.doi.org/10.1016/ S0140-6736(13)62026-7.

Research output: Contribution to journal › Article (Academic Journal) › peer-review

Open Access

File

399 Citations (Scopus)

1923 Downloads (Pure)

Trends in poverty and disadvantage among households with disabled people from 1999-2012: from exclusion to inclusion?

Heslop, P. & Gordon, D., Oct 2014, In: Journal of Poverty and Social Justice. 22, 3, p. 209-226 18 p.

Research output: Contribution to journal › Article (Academic Journal) › peer-review

5 Citations (Scopus)

2013

18 Citations (Scopus)

We are failing people with learning disabilities - and they're dying younger

Heslop, P., 16 Aug 2013, In: The Conversation. p. online

Research output: Contribution to journal › Article (Academic Journal)

2012

Commentary on “Does he have sugar in his tea?”

Heslop, P., Marriott, A., Fleming, P., Hoghton, M. & Russ, L., 2012, In: Tizard Learning Disability Review. 17, 2, p. 64 - 68 5 p.

Research output: Contribution to journal › Article (Academic Journal) › peer-review

1 Citation (Scopus)

Making best interests decisions - are professionals getting it right?

Boyle, G., Williams, V. J., Jepson, M. J., Swift, P., Williamson, T. & Heslop, P., 2012, (Accepted/In press) In: Journal of Dementia Care.

Research output: Contribution to journal › Article (Academic Journal) › peer-review

2011

Supporting people with learning disabilities who self injure

Heslop, P., 2011, In: Tizard Learning Disability Review. 16(1), p. 5 - 15

Research output: Contribution to journal › Article (Academic Journal) › peer-review

1 Citation (Scopus)

The Confidential Inquiry into the deaths of people with learning disabilities - the story so far

Heslop, P. & Marriott, A., 2011, In: Tizard Learning Disability Review. 16, 5, p. 18 - 25 8 p.

Research output: Contribution to journal › Article (Academic Journal) › peer-review

3 Citations (Scopus)

2010

Damage limitation

Heslop, P. & Macaulay, F., Jan 2010, In: Learning Disability Today. p. 16 - 18

Research output: Contribution to journal › Article (Academic Journal) › peer-review

1 Citation (Scopus)

2009

Help to move on - but to what? Young people with learning difficulties moving on from out-of-residential schools or colleges

Heslop, P. & Abbott, D. W. F., Mar 2009, In: British Journal of Learning Disabilities. 37, 1, p. 12 - 20 9 p.

Research output: Contribution to journal › Article (Academic Journal) › peer-review

6 Citations (Scopus)

Out of sight, out of mind? Transition for young people with learning diffficulties

Abbott, D. & Heslop, P., 2009, In: British Journal of Special Education. 36(1), p. 45 - 54

Research output: Contribution to journal › Article (Academic Journal) › peer-review

8 Citations (Scopus)

2007

School's Out: pathways for young people with intellectual disabilities from out-of-area residential schools or colleges

Heslop, P. & Abbott, D., Jul 2007, In: Journal of Intellectual Disability Research. 51 (7), p. 489 - 496 8 p.

Research output: Contribution to journal › Article (Academic Journal) › peer-review

29 Citations (Scopus)

2005

Good practice in befriending services for people with learning difficulties

Heslop, P., Mar 2005, In: British Journal of Learning Disabilities. 33 (1), p. 27 - 33 7 p.

Research output: Contribution to journal › Article (Academic Journal) › peer-review

23 Citations (Scopus)

Mental health support needs of people with a learning difficulty: a medical or a social model?

Williams, J., Heslop, P. & Williams, V. J., May 2005, In: Disability and Society. 20, 3, p. 231-245 15 p.

Research output: Contribution to journal › Article (Academic Journal) › peer-review

29 Citations (Scopus)

Mental health support needs of people with a learning disability: a medical or social model?

Williams, V. & Heslop, P., 2005, In: Disability and Society. 20, p. 231 - 245

Research output: Contribution to journal › Article (Academic Journal) › peer-review

The knowledge people with learning disabilities and their carers have about psychotropic medication

Heslop, P., Folkes, E. & Rodgers, J., Oct 2005, In: Learning Disability Review. 10 (4), p. 10 - 18 9 p.

Research output: Contribution to journal › Article (Academic Journal) › peer-review

14 Citations (Scopus)

Emeritus Professor Pauline Heslop

Research output

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