Developing a National Database for Fetal Alcohol Spectrum Disorder (Nat-FASD UK): incorporating the views and recommendations of people with FASD and their carers. Public Engagement Funding.

Through this work we will explore the views and experiences of people with FASD and their carers with regards to: a) data sharing and consent for research, particularly in relation to views on a National FASD database and use of their personal data; b) research priorities; c) procedures for the study; d) whether they would like to be contacted to be involved in the study in the future as a participant, PPI/steering group member, e) any other aspects that participants deem relevant.