End of Life Care Preferences

Project Details


Professor David Abbott from Bristol University will investigate the views of men with Duchenne muscular dystrophy about how, when and with whom conversations about end-of-life care should take place. It has been shown that such discussions can improve quality of life in people with life-limiting conditions. The results will inform clinicians, family members and men with Duchenne muscular dystrophy about how to discuss these important but delicate issues.

Please follow the links to the related research output ("‘Wasting precious time’: young men with Duchenne muscular dystrophy negotiate the transition to adulthood") to read more about the findings of this study.
Alternative titleBuilding the Evidence Base for End of Life Decision Making for Men with Duchenne Muscular Dystrophy (DMD)
Effective start/end date1/09/141/09/15

Structured keywords

  • PolicyBristolChildrenAndFamilies
  • PolicyBristolHealthAndWellbeing
  • PolicyBristolSocialChangeAndDiversity
  • SPS Norah Fry Centre for Disability Studies


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