Research output per year
Research output per year
Project Details
Description
Professor David Abbott from Bristol University will investigate the views of men with Duchenne muscular dystrophy about how, when and with whom conversations about end-of-life care should take place. It has been shown that such discussions can improve quality of life in people with life-limiting conditions. The results will inform clinicians, family members and men with Duchenne muscular dystrophy about how to discuss these important but delicate issues.
Please follow the links to the related research output ("‘Wasting precious time’: young men with Duchenne muscular dystrophy negotiate the transition to adulthood") to read more about the findings of this study.
Please follow the links to the related research output ("‘Wasting precious time’: young men with Duchenne muscular dystrophy negotiate the transition to adulthood") to read more about the findings of this study.
| Alternative title | Building the Evidence Base for End of Life Decision Making for Men with Duchenne Muscular Dystrophy (DMD) |
|---|---|
| Status | Finished |
| Effective start/end date | 1/09/14 → 1/09/15 |
| Links | http://www.muscular-dystrophy.org/research/grants/current_grants/7842_exploring_the_views_of_men_with_duchenne_muscular_dystrophy_on_end-of-life_care_decision_making http://policystudies.blogs.ilrt.org/2014/08/20/how-long-is-a-good-life/ |
Research Groups and Themes
- PolicyBristolChildrenAndFamilies
- PolicyBristolHealthAndWellbeing
- PolicyBristolSocialChangeAndDiversity
- SPS Norah Fry Centre for Disability Studies
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Research output
- 1 Article (Academic Journal)
-
‘Wasting precious time’: young men with Duchenne muscular dystrophy negotiate the transition to adulthood
Abbott, D. W. F. & Carpenter, J. S. W., 2014, In: Disability and Society. 29, 8, p. 1192-1205 13 p.Research output: Contribution to journal › Article (Academic Journal) › peer-review
51 Citations (Scopus)