Abstract
Purpose:
Among health researchers, there is a growing appreciation of the importance of involvement ofservice users and members of the public. This recognition has not only resulted in involvement guidelines andimproved research ethics, but also an increasing use of consensus processes with service users and membersof the public to determine research priorities and questions, and to agree outcomes to be measured inintervention studies. There is, however, limited advice about how to safely involve survivors of violence andabuse in consensus-based studies.
Methods/Results:
This commentary provides an overview of the adaptations made to a process of coreoutcome set development, to ensure that survivors of violence and abuse felt safe, heard and supported, andable to contribute in a meaningful way.
Conclusions:
We advocate for an iterative process of listening to and learning from survivors, as well as buy-infrom funders to ensure research studies are appropriately resourced and involve sufficient planning time.
Among health researchers, there is a growing appreciation of the importance of involvement ofservice users and members of the public. This recognition has not only resulted in involvement guidelines andimproved research ethics, but also an increasing use of consensus processes with service users and membersof the public to determine research priorities and questions, and to agree outcomes to be measured inintervention studies. There is, however, limited advice about how to safely involve survivors of violence andabuse in consensus-based studies.
Methods/Results:
This commentary provides an overview of the adaptations made to a process of coreoutcome set development, to ensure that survivors of violence and abuse felt safe, heard and supported, andable to contribute in a meaningful way.
Conclusions:
We advocate for an iterative process of listening to and learning from survivors, as well as buy-infrom funders to ensure research studies are appropriately resourced and involve sufficient planning time.
Original language | English |
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Journal | BMJ Open |
Publication status | Accepted/In press - 6 Dec 2024 |