Attitudes Toward Proactive Topical Corticosteroid Use Among Women With Vulval Lichen Sclerosus

Sophie Rees*, Susanne Arnold, Ashod Kherlopian, Gayle Fischer

*Corresponding author for this work

Research output: Contribution to journalArticle (Academic Journal)peer-review

Abstract

Objectives:
Some practitioners are adopting proactive topical corticosteroid (TCS) therapy for vulval lichen sclerosus (VLS). We sought to understand patient attitudes toward proactive TCS therapy for VLS in a context in which proactive therapy is adopted.

Methods:
Four online focus group discussions with 12 participants. Data analysis was informed by social constructionist grounded theory.

Results:
All participants had accepted a proactive regimen. Three themes were developed from the analysis: “Coming to accept proactive therapy,” “Motivators to maintaining a proactive regimen,” and “The importance of a routine that fits me.” Within each theme are subthemes illustrating different dimensions of the theme.

Conclusions:
Accepting proactive TCS therapy for VLS requires incorporating regular TCS use into a patient's identity, unlearning previous understandings regarding the safety of long-term TCS use, and adopting a regimen that fits within patients' lives and minimizes the loss of autonomy.
Original languageEnglish
Pages (from-to)183-188
Number of pages6
JournalJournal of Lower Genital Tract Disease
Volume28
Issue number2
DOIs
Publication statusPublished - 1 Apr 2024

Bibliographical note

Publisher Copyright:
© Lippincott Williams & Wilkins.

Research Groups and Themes

  • BTC (Bristol Trials Centre)

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