Cheap, fast, or secure? When research projects meet real-world participants.

Research output: Contribution to conferenceConference Abstract

Abstract

It is often said that the 'S' in IoT stands for security. In a similar vein, the 'P' in the name might be said to stand for privacy-first design. There is a large and challenging gap between functional adequacy and best practice.

In this talk, we describe the process of developing the 'home gateway' for the SPHERE 100-homes project, a Linux-based research data aggregator installed into participant homes around Bristol in order to act as an endpoint for healthcare data collection on human participants.

We begin by briefly describing the regulatory landscape that applies to human-centred research data. We tested and used open-source packages and services designed to fill as many gaps in our service design as possible. We also had to find solutions for the further, specific challenges raised by the particular requirements of the project, such as data encryption at rest, robust behaviour in the face of unexpected input or events, and auditable data workflows. Finally, we look at the everyday challenges of safely and securely maintaining a sustainable platform in the face of the risks posed by real-world vulnerabilities - patching, system updates and responding to new flaws discovered in standards, hardware and firmware.
Original languageEnglish
Publication statusPublished - 2019
EventFourth Conference of Research Software Engineers - University of Birmingham, Birmingham, United Kingdom
Duration: 16 Sep 201919 Sep 2019
https://rse.ac.uk/conf2019/

Conference

ConferenceFourth Conference of Research Software Engineers
Abbreviated titleRSEConUK 2019
CountryUnited Kingdom
CityBirmingham
Period16/09/1919/09/19
Internet address

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    Tonkin, E. L., & Tourte, G. J. L. (2019). Cheap, fast, or secure? When research projects meet real-world participants.. Abstract from Fourth Conference of Research Software Engineers , Birmingham, United Kingdom.