Cross sectional, qualitative thematic analysis of patient perspectives of disease impact in juvenile idiopathic arthritis-associated uveitis

Ethan S Sen, Michelle J Morgan, Rachael MacLeod, Helen Strike, Ann Hinchcliffe, Andrew D Dick, Brinda Muthusamy, Athimalaipet V Ramanan

Research output: Contribution to journalArticle (Academic Journal)peer-review

13 Citations (Scopus)
306 Downloads (Pure)

Abstract

BACKGROUND: Chronic health conditions in children can have a significant impact on their quality of life. The aim of this study was to explore the subjective experience of children and young people being treated for chronic, non-infectious uveitis associated with a systemic disease such as juvenile idiopathic arthritis.

METHODS: A semi-structured interview was conducted with 10 children and young people aged between 6 and 18 years of age and their parents.

RESULTS: Preliminary thematic analysis indicated that both the treatment and complications of the disorder have a significant impact on the quality of life and emotional well-being of patients, not only in terms of the discomfort experienced but also in perceptions of social isolation, anxiety and sense of injustice.

CONCLUSION: This study shows that themes including "impact on school", "social factors" and "emotional reactions" are important domains influencing health-related quality of life (HRQoL) in children with chronic uveitis. Inclusion of questions relating to these domains should be considered in future uveitis-specific tools examining HRQoL in these patients.

Original languageEnglish
Pages (from-to)58
JournalPediatric Rheumatology
Volume15
Issue number1
DOIs
Publication statusPublished - 4 Aug 2017

Keywords

  • Journal Article
  • Juvenile idiopathic arthritis
  • Uveitis
  • Quality of life
  • Patient-reported outcome measures

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