Developing an intervention to implement electronic patient-reported outcomes in renal services in the UK

Sabine N Van Der Veer, Angelo Ercia, Fergus J Caskey, Ken Farrington, Francine Jury , Michael Rees, Tim Whitlock, Sarah Knowles

Research output: Chapter in Book/Report/Conference proceedingConference Contribution (Conference Proceeding)

7 Citations (Scopus)
33 Downloads (Pure)


Routinely collecting and using electronic patient-reported outcome (ePRO) data in clinical practice can improve patients’ experience and outcomes, but implementing this at scale has proved challenging. As part of the Optimising routine collection of electronic patient-reported outcomes (OPT-ePRO) study, we therefore developed an intervention that aimed to facilitate the implementation of ePROs. We are conducting OPT-ePRO in the context of secondary care for people with chronic kidney disease in the UK, with three renal units participating as our study sites. Intervention design was guided by Normalisation Process Theory, and informed by published literature and qualitative research. The intervention consisted of a national infrastructure to securely collect, transfer and display ePRO data, complemented with materials and procedures to support kidney patients and renal unit staff with embedding ePROs in usual care pathways. The next step will be to bring the OPT-ePRO intervention into practice and iteratively refine it
Original languageEnglish
Title of host publicationMedical Informatics Europe Conference Proceedings
PublisherIOS Press
Number of pages5
Publication statusPublished - 1 Jan 2020
EventMedical Informatics Europe conference - Geneva, Switzerland
Duration: 28 Apr 20201 May 2020
Conference number: 30

Publication series

PublisherEuropean Journal for Biomedical Informatics
ISSN (Print)1801-5603


ConferenceMedical Informatics Europe conference
Abbreviated titleMIE
Internet address


  • eHealth
  • Patient-generated health data
  • Symptom assessment


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