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Development and initial testing of a new instrument to measure the experience of eczema control in adults and children: Recap of atopic eczema (RECAP)

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Development and initial testing of a new instrument to measure the experience of eczema control in adults and children : Recap of atopic eczema (RECAP). / Howells, Laura; Chalmers, Joanne R; Gran, Sonia; Ahmed, Amina; Apfelbacher, Christian; Burton, Tim ; Howie, Lynita; Lawton, Sandra; Ridd, Matthew J; Rogers, Natasha K.; Sears, Alison V.; Spuls, Phyllis; von Kobyletski, Laura; Thomas, Kim S.

In: British Journal of Dermatology, 02.12.2019.

Research output: Contribution to journalArticle

Harvard

Howells, L, Chalmers, JR, Gran, S, Ahmed, A, Apfelbacher, C, Burton, T, Howie, L, Lawton, S, Ridd, MJ, Rogers, NK, Sears, AV, Spuls, P, von Kobyletski, L & Thomas, KS 2019, 'Development and initial testing of a new instrument to measure the experience of eczema control in adults and children: Recap of atopic eczema (RECAP)', British Journal of Dermatology. https://doi.org/10.1111/bjd.18780

APA

Howells, L., Chalmers, J. R., Gran, S., Ahmed, A., Apfelbacher, C., Burton, T., ... Thomas, K. S. (Accepted/In press). Development and initial testing of a new instrument to measure the experience of eczema control in adults and children: Recap of atopic eczema (RECAP). British Journal of Dermatology. https://doi.org/10.1111/bjd.18780

Vancouver

Author

Howells, Laura ; Chalmers, Joanne R ; Gran, Sonia ; Ahmed, Amina ; Apfelbacher, Christian ; Burton, Tim ; Howie, Lynita ; Lawton, Sandra ; Ridd, Matthew J ; Rogers, Natasha K. ; Sears, Alison V. ; Spuls, Phyllis ; von Kobyletski, Laura ; Thomas, Kim S. / Development and initial testing of a new instrument to measure the experience of eczema control in adults and children : Recap of atopic eczema (RECAP). In: British Journal of Dermatology. 2019.

Bibtex

@article{9774675bb79645f2bbab41078a74d8c3,
title = "Development and initial testing of a new instrument to measure the experience of eczema control in adults and children: Recap of atopic eczema (RECAP)",
abstract = "BackgroundEczema control has been identified as an important outcome by key stakeholders in eczema research (including patients, carers, healthcare professionals, and researchers) but no validated instruments for the domain have been identified.Objectiveto develop a measurement instrument to capture a patient’s perspective of eczema control that is suitable for use in eczema clinical trials. MethodsBest practice for development of a patient‐reported outcome was followed. A mixed‐methods approach was used to develop and refine a conceptual framework, generate, refine and select items and to test the distribution and construct validity of the final scale. The mixed‐methods approach involved expert panel meetings (including patient representatives, healthcare professionals and methodologists), and data collection using a focus group, cognitive interviews and an online survey with people with eczema/caregivers. Multivariable linear regression was used in the item selection process.ResultsFourteen expert panel members co‐produced the instrument; with input from people with eczema/caregivers via a focus group (n=6), cognitive interviews (n=13) and an online survey (n=330). The resulting instrument, Recap of atopic eczema (RECAP), is a seven‐item questionnaire that captures eczema control via self or caregiver report. The development process aimed to ensure good content validity and feasibility. Initial testing suggested no floor or ceiling effects and good construct validity. Hypothesised correlation with the Patient‐Oriented Eczema Measure was confirmed (r(258) = 0.83, p < 0.001). ConclusionRECAP has the potential to improve reporting of eczema control in research and clinical practice. Further exploration of measurement properties is required.",
author = "Laura Howells and Chalmers, {Joanne R} and Sonia Gran and Amina Ahmed and Christian Apfelbacher and Tim Burton and Lynita Howie and Sandra Lawton and Ridd, {Matthew J} and Rogers, {Natasha K.} and Sears, {Alison V.} and Phyllis Spuls and {von Kobyletski}, Laura and Thomas, {Kim S.}",
year = "2019",
month = "12",
day = "2",
doi = "10.1111/bjd.18780",
language = "English",
journal = "British Journal of Dermatology",
issn = "0007-0963",
publisher = "Wiley",

}

RIS - suitable for import to EndNote

TY - JOUR

T1 - Development and initial testing of a new instrument to measure the experience of eczema control in adults and children

T2 - Recap of atopic eczema (RECAP)

AU - Howells, Laura

AU - Chalmers, Joanne R

AU - Gran, Sonia

AU - Ahmed, Amina

AU - Apfelbacher, Christian

AU - Burton, Tim

AU - Howie, Lynita

AU - Lawton, Sandra

AU - Ridd, Matthew J

AU - Rogers, Natasha K.

AU - Sears, Alison V.

AU - Spuls, Phyllis

AU - von Kobyletski, Laura

AU - Thomas, Kim S.

PY - 2019/12/2

Y1 - 2019/12/2

N2 - BackgroundEczema control has been identified as an important outcome by key stakeholders in eczema research (including patients, carers, healthcare professionals, and researchers) but no validated instruments for the domain have been identified.Objectiveto develop a measurement instrument to capture a patient’s perspective of eczema control that is suitable for use in eczema clinical trials. MethodsBest practice for development of a patient‐reported outcome was followed. A mixed‐methods approach was used to develop and refine a conceptual framework, generate, refine and select items and to test the distribution and construct validity of the final scale. The mixed‐methods approach involved expert panel meetings (including patient representatives, healthcare professionals and methodologists), and data collection using a focus group, cognitive interviews and an online survey with people with eczema/caregivers. Multivariable linear regression was used in the item selection process.ResultsFourteen expert panel members co‐produced the instrument; with input from people with eczema/caregivers via a focus group (n=6), cognitive interviews (n=13) and an online survey (n=330). The resulting instrument, Recap of atopic eczema (RECAP), is a seven‐item questionnaire that captures eczema control via self or caregiver report. The development process aimed to ensure good content validity and feasibility. Initial testing suggested no floor or ceiling effects and good construct validity. Hypothesised correlation with the Patient‐Oriented Eczema Measure was confirmed (r(258) = 0.83, p < 0.001). ConclusionRECAP has the potential to improve reporting of eczema control in research and clinical practice. Further exploration of measurement properties is required.

AB - BackgroundEczema control has been identified as an important outcome by key stakeholders in eczema research (including patients, carers, healthcare professionals, and researchers) but no validated instruments for the domain have been identified.Objectiveto develop a measurement instrument to capture a patient’s perspective of eczema control that is suitable for use in eczema clinical trials. MethodsBest practice for development of a patient‐reported outcome was followed. A mixed‐methods approach was used to develop and refine a conceptual framework, generate, refine and select items and to test the distribution and construct validity of the final scale. The mixed‐methods approach involved expert panel meetings (including patient representatives, healthcare professionals and methodologists), and data collection using a focus group, cognitive interviews and an online survey with people with eczema/caregivers. Multivariable linear regression was used in the item selection process.ResultsFourteen expert panel members co‐produced the instrument; with input from people with eczema/caregivers via a focus group (n=6), cognitive interviews (n=13) and an online survey (n=330). The resulting instrument, Recap of atopic eczema (RECAP), is a seven‐item questionnaire that captures eczema control via self or caregiver report. The development process aimed to ensure good content validity and feasibility. Initial testing suggested no floor or ceiling effects and good construct validity. Hypothesised correlation with the Patient‐Oriented Eczema Measure was confirmed (r(258) = 0.83, p < 0.001). ConclusionRECAP has the potential to improve reporting of eczema control in research and clinical practice. Further exploration of measurement properties is required.

U2 - 10.1111/bjd.18780

DO - 10.1111/bjd.18780

M3 - Article

C2 - 31794074

JO - British Journal of Dermatology

JF - British Journal of Dermatology

SN - 0007-0963

ER -