Disabled men with muscular dystrophy negotiate gender

David Abbott*, John Carpenter, Barbara E. Gibson, Jon Hastie, Marcus Jepson, Brett Smith

*Corresponding author for this work

Research output: Contribution to journalArticle (Academic Journal)

3 Citations (Scopus)
218 Downloads (Pure)

Abstract

Disability is often portrayed as a one-dimensional category devoid of further intersections. Work which has addressed the intersection of disability and male gender has rarely considered different types of disability or impairment or foregrounded the experiences of disabled men themselves. This paper is based on empirical work carried out in England with men who have Duchenne muscular dystrophy (DMD). We explored with participants their sense of themselves as men and their commonalities and differences with other men. Findings suggest that men with DMD claim, reject and redefine what it meant to them to be men. Doing gender was often heavily reliant on the availability and permission of others. Our study highlights the usefulness of exploring gender with men with particular experiences of disability and of looking at how this might change over a life course, especially when the nature and extent of the life course is a precarious one.
Original languageEnglish
Pages (from-to)683-703
Number of pages21
JournalDisability and Society
Volume34
Issue number5
DOIs
Publication statusPublished - 18 Mar 2019

Structured keywords

  • SPS Norah Fry Centre for Disability Studies

Keywords

  • Duchenne muscular dystrophy
  • gender
  • intersectionality
  • life course

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