Enabling the Participation of People with Parkinson's and their Caregivers in Co-Inquiry around Collectivist Health Technologies

Roisin McNaney, John Vines, Andy Dow, Harry Robinson, Heather Robinson, Kate McDonald, Leslie Brown, Peter Santer, Don Murray, Janice Murray, David Green, Peter Wright

Research output: Contribution to conferenceConference Paper

Abstract

While user participation is central to HCI, co-inquiry takes this further by having participants direct and control research from conceptualisation to completion. We describe a co-inquiry, conducted over 16 months with a Parkinson's support group. We explored how the participation of members might be enabled across multiple stages of a research project, from the generation of research questions to the development of a prototype. Participants directed the research into developing alternative modes of information provision, resulting in'Parkinson's Radio'--a collectivist health information service produced and edited by members of the support group. We reflect on how we supported participation at different stages of the project and the successes and challenges faced by the team. We contribute insights into the design of collectivist health technologies for this group, and discuss opportunities and tensions for …
Original languageEnglish
Pages491
Number of pages10
Publication statusPublished - 2018
EventProceedings of the 2018 CHI Conference on Human Factors in Computing Systems: CHI'18 -
Duration: 30 Apr 2018 → …

Conference

ConferenceProceedings of the 2018 CHI Conference on Human Factors in Computing Systems
Period30/04/18 → …

Structured keywords

  • Digital Health

Keywords

  • Parkinson's disease
  • HCI
  • Co-production
  • Co-design
  • Radio

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  • Cite this

    McNaney, R., Vines, J., Dow, A., Robinson, H., Robinson, H., McDonald, K., Brown, L., Santer, P., Murray, D., Murray, J., Green, D., & Wright, P. (2018). Enabling the Participation of People with Parkinson's and their Caregivers in Co-Inquiry around Collectivist Health Technologies. 491. Paper presented at Proceedings of the 2018 CHI Conference on Human Factors in Computing Systems, .