Skip to content

End of life care: A scoping review of experiences of Advance Care Planning for people with dementia

Research output: Contribution to journalArticle

Original languageEnglish
Pages (from-to)825-845
Number of pages21
Issue number3
Early online date7 Nov 2016
DateAccepted/In press - 30 Sep 2016
DateE-pub ahead of print - 7 Nov 2016
DatePublished (current) - 1 Apr 2019


Despite increasing attention given to dementia by international governments and policy makers the focus of end of life care has been on the dying trajectory of malignant disease. People with severe dementia have complex physical and psychological needs, yet, the disease is not always recognised as terminal. Advance care planning involving people with dementia and their families can provide opportunities to discuss and later, initiate timely palliative care.

We conducted a scoping review of studies exploring decisions associated with the EoLC of people with dementia. Eligible studies had to report on decision making at the end of life and by whom (the dying person, clinician/health professional or relative/family member).

Twenty five eligible studies reported on advance care planning and end of life care decisions for individuals with dementia. The papers highlight several challenges that need to be addressed in order to provide adequate and effective care for people with dementia as they near the end of their life.

    Research areas

  • Advance Care Planning, death, decision-making, dementia, dying, end-of-life care

Download statistics

No data available



  • Full-text PDF (accepted author manuscript)

    Rights statement: This is the accepted author manuscript (AAM). The final published version (version of record) is available online via SAGE Publications at Please refer to any applicable terms of use of the publisher.

    Accepted author manuscript, 611 KB, PDF document


View research connections

Related faculties, schools or groups