Explanation before Adoption: Revealing Methods Used to Support Informed Consent for Complex Platforms

Rachel Eardley; Emma L. Tonkin; Ewan Soubutts; Amid Ayobi; Gregory J. L. Tourte; Rachael Gooberman-Hill; Ian J Craddock; Aisling Ann O'Kane

doi:10.1145/3579482

Explanation before Adoption: Revealing Methods Used to Support Informed Consent for Complex Platforms

Rachel Eardley, Emma L. Tonkin, Ewan Soubutts, Amid Ayobi, Gregory J. L. Tourte, Rachael Gooberman-Hill, Ian J Craddock, Aisling Ann O'Kane

Research output: Contribution to journal › Article (Academic Journal) › peer-review

23 Downloads (Pure)

Abstract

Explaining health technology platforms to non-technical members of the public is an important part of the process of informed consent. Complex technology platforms that deal with safety-critical areas are particularly challenging, often operating within private domains (eg health services within the home) and used by individuals with various understandings of hardware, software, and algorithmic design. Through two studies, the first an interview and the second an observational study, we questioned how experts (eg those who designed, built, and installed a technology platform) supported provision of informed consent by participants. We identify a wide range of tools, techniques, and adaptations used by experts to explain the complex SPHERE sensor-based home health platform, provide implications for the design of tools to aid explanations, suggest opportunities for interactive explanations, present the range of information needed, and indicate future research possibilities in communicating technology platforms.

Original language	English
Article number	49
Number of pages	25
Journal	Proceedings of the ACM on Human-Computer Interaction
Volume	7
Issue number	CSCW1
DOIs	https://doi.org/10.1145/3579482
Publication status	Published - 16 Apr 2023

Structured keywords

SPHERE
Digital Health

Keywords

Machine Learning
Onboarding
Smart home
Health
Case study
Design process

Access to Document

10.1145/3579482Licence: CC BY

Full-text PDF (final published version) Final published version, 6.31 MBLicence: CC BY

Handle.net

Persistent link

SPHERE2
Craddock, I. J., Mirmehdi, M., Piechocki, R. J., Flach, P. A., Oikonomou, G., Burghardt, T., Damen, D., Santos-Rodriguez, R., O'Kane, A. A., McConville, R., Masullo, A. & Gooberman-Hill, R.
1/10/18 → 31/01/23
Project: Research, Parent

Cite this

@article{28ac563644d2449390c08ae5ae3097f0,

title = "Explanation before Adoption: Revealing Methods Used to Support Informed Consent for Complex Platforms",

abstract = "Explaining health technology platforms to non-technical members of the public is an important part of the process of informed consent. Complex technology platforms that deal with safety-critical areas are particularly challenging, often operating within private domains (eg health services within the home) and used by individuals with various understandings of hardware, software, and algorithmic design. Through two studies, the first an interview and the second an observational study, we questioned how experts (eg those who designed, built, and installed a technology platform) supported provision of informed consent by participants. We identify a wide range of tools, techniques, and adaptations used by experts to explain the complex SPHERE sensor-based home health platform, provide implications for the design of tools to aid explanations, suggest opportunities for interactive explanations, present the range of information needed, and indicate future research possibilities in communicating technology platforms.",

keywords = "Machine Learning, Onboarding, Smart home, Health, Case study, Design process",

author = "Rachel Eardley and Tonkin, {Emma L.} and Ewan Soubutts and Amid Ayobi and Tourte, {Gregory J. L.} and Rachael Gooberman-Hill and Craddock, {Ian J} and O'Kane, {Aisling Ann}",

year = "2023",

month = apr,

day = "16",

doi = "10.1145/3579482",

language = "English",

volume = "7",

journal = "Proceedings of the ACM on Human-Computer Interaction",

issn = "2573-0142",

publisher = "Association for Computing Machinery (ACM)",

number = "CSCW1",

}

TY - JOUR

T1 - Explanation before Adoption

T2 - Revealing Methods Used to Support Informed Consent for Complex Platforms

AU - Eardley, Rachel

AU - Tonkin, Emma L.

AU - Soubutts, Ewan

AU - Ayobi, Amid

AU - Tourte, Gregory J. L.

AU - Gooberman-Hill, Rachael

AU - Craddock, Ian J

AU - O'Kane, Aisling Ann

PY - 2023/4/16

Y1 - 2023/4/16

N2 - Explaining health technology platforms to non-technical members of the public is an important part of the process of informed consent. Complex technology platforms that deal with safety-critical areas are particularly challenging, often operating within private domains (eg health services within the home) and used by individuals with various understandings of hardware, software, and algorithmic design. Through two studies, the first an interview and the second an observational study, we questioned how experts (eg those who designed, built, and installed a technology platform) supported provision of informed consent by participants. We identify a wide range of tools, techniques, and adaptations used by experts to explain the complex SPHERE sensor-based home health platform, provide implications for the design of tools to aid explanations, suggest opportunities for interactive explanations, present the range of information needed, and indicate future research possibilities in communicating technology platforms.

AB - Explaining health technology platforms to non-technical members of the public is an important part of the process of informed consent. Complex technology platforms that deal with safety-critical areas are particularly challenging, often operating within private domains (eg health services within the home) and used by individuals with various understandings of hardware, software, and algorithmic design. Through two studies, the first an interview and the second an observational study, we questioned how experts (eg those who designed, built, and installed a technology platform) supported provision of informed consent by participants. We identify a wide range of tools, techniques, and adaptations used by experts to explain the complex SPHERE sensor-based home health platform, provide implications for the design of tools to aid explanations, suggest opportunities for interactive explanations, present the range of information needed, and indicate future research possibilities in communicating technology platforms.

KW - Machine Learning

KW - Onboarding

KW - Smart home

KW - Health

KW - Case study

KW - Design process

U2 - 10.1145/3579482

DO - 10.1145/3579482

M3 - Article (Academic Journal)

SN - 2573-0142

VL - 7

JO - Proceedings of the ACM on Human-Computer Interaction

JF - Proceedings of the ACM on Human-Computer Interaction

IS - CSCW1

M1 - 49

ER -

Explanation before Adoption: Revealing Methods Used to Support Informed Consent for Complex Platforms

Abstract

Structured keywords

Keywords

Access to Document

Handle.net

Fingerprint

Projects

SPHERE2

Cite this