Foundation of the International Federation of Human Genetics Societies: The Catalyst

Karen Birmingham

doi:10.1007/978-3-319-51783-4_15

Foundation of the International Federation of Human Genetics Societies: The Catalyst

Karen Birmingham

Research output: Chapter in Book/Report/Conference proceeding › Chapter in a book

1 Citation (Scopus)

Abstract

The International Federation of Human Genetic Societies was founded in 1996 by a group of American and European geneticists, who had become increasingly dissatisfied with the International Congress of Human Genetics, the only worldwide forum for geneticists at that time. The Congress, founded in 1956, was run by a self-styled “Permanent Committee”, regarded by many as dysfunctional. In collaboration with the World Health Organization, two of the Permanent Committee co-authored a highly controversial set of guidelines on ethics and service provision, which Professor Marcus Pembrey used to catalyse the rapid instigation of the International Federation. This aspect of the Federation’s foundation was unlikely to have come to light had it not been revealed during a brief interview with Professor Pembrey.

Original language	English
Title of host publication	History of Human Genetics
Subtitle of host publication	Aspects of Its Development and Global Perspectives
Editors	Heike Petermann, Peter Harper, Susanne Doetz
Publisher	Springer, Cham
Pages	253-261
Number of pages	9
ISBN (Electronic)	9783319517834
ISBN (Print)	9783319517827
DOIs	https://doi.org/10.1007/978-3-319-51783-4_15
Publication status	Published - 11 May 2017

Keywords

Oral history
Human genetics
International Federation of Human Genetics Societies
International Congress of Human Genetics

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

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10.1007/978-3-319-51783-4_15

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abstract = "The International Federation of Human Genetic Societies was founded in 1996 by a group of American and European geneticists, who had become increasingly dissatisfied with the International Congress of Human Genetics, the only worldwide forum for geneticists at that time. The Congress, founded in 1956, was run by a self-styled “Permanent Committee”, regarded by many as dysfunctional. In collaboration with the World Health Organization, two of the Permanent Committee co-authored a highly controversial set of guidelines on ethics and service provision, which Professor Marcus Pembrey used to catalyse the rapid instigation of the International Federation. This aspect of the Federation{\textquoteright}s foundation was unlikely to have come to light had it not been revealed during a brief interview with Professor Pembrey.",

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AB - The International Federation of Human Genetic Societies was founded in 1996 by a group of American and European geneticists, who had become increasingly dissatisfied with the International Congress of Human Genetics, the only worldwide forum for geneticists at that time. The Congress, founded in 1956, was run by a self-styled “Permanent Committee”, regarded by many as dysfunctional. In collaboration with the World Health Organization, two of the Permanent Committee co-authored a highly controversial set of guidelines on ethics and service provision, which Professor Marcus Pembrey used to catalyse the rapid instigation of the International Federation. This aspect of the Federation’s foundation was unlikely to have come to light had it not been revealed during a brief interview with Professor Pembrey.

KW - Oral history

KW - Human genetics

KW - International Federation of Human Genetics Societies

KW - International Congress of Human Genetics

U2 - 10.1007/978-3-319-51783-4_15

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BT - History of Human Genetics

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A2 - Harper, Peter

A2 - Doetz, Susanne

PB - Springer, Cham

ER -

Foundation of the International Federation of Human Genetics Societies: The Catalyst

Abstract

Keywords

UN SDGs

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