Health professional communication and the diagnosis and care of infants born with cleft lip and palate in the U.K.

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Abstract

Objectives A qualitative study was conducted to explore family experiences of communication with health care professionals following the diagnosis and birth of a child with cleft lip and/or palate in the United Kingdom. Twenty four interviews were conducted with families who had a child born with cleft lip and/or palate. Analysis of the data revealed that a diagnosis of cleft lip and/or palate may not be handled sensitively by the non-specialist health professionals who are providing care. Furthermore, a lack of knowledge and inadequate support may continue after the child is born as some health professionals do not provide accurate or appropriate advice relevant to this condition. The findings have implications for current clinical practice with regard to the diagnosis and care of infants born with cleft lip and/or palate in the United Kingdom. These implications are discussed within the context of improving and developing communication in the diagnosis and care of children with cleft lip and/or palate and Experienced-Based Co Design.
Original languageEnglish
Pages (from-to)236-243
Number of pages8
JournalJournal of Neonatal Nursing
Volume22
Issue number5
Early online date7 Jun 2016
DOIs
Publication statusPublished - Oct 2016

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Keywords

  • Cleft lip
  • Cleft palate
  • Health care professionals
  • Sonographer
  • Communication
  • Diagnosis
  • Clinical Nurse Specialist
  • Midwife
  • Breastfeeding
  • Bottle-feeding

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