‘I am doing fine only because I have not told anyone’: the necessity of concealment in the lives of people living with HIV in India

Mathew Sunil George, Helen Lambert

Research output: Contribution to journalArticle (Academic Journal)peer-review

9 Citations (Scopus)
236 Downloads (Pure)

Abstract

In HIV prevention and care programmes, disclosure of status by HIV-positive individuals is generally encouraged to contain the infection and provide adequate support to the person concerned. Lack of disclosure is generally framed as a barrier to preventive behaviours and accessing support. The assumption that disclosure is beneficial is also reflected in studies that aim to identify determinants of disclosure and recommend individual-level measures to promote disclosure. However, in contexts where HIV infection is stigmatised and there is fear of rejection and discrimination among those living with HIV, concealment of status becomes a way to try and regain as much as possible the life that was disrupted by the discovery of HIV infection. In this study of HIV-positive women and children in India, concealment was considered essential by individuals and families of those living with HIV to re-establish and maintain their normal lives in an environment where stigma and discrimination were prevalent. This paper describes why women and care givers of children felt the need to conceal HIV status, the various ways in which people tried to do so and the implications for treatment of people living with HIV. We found that while women were generally willing to disclose their status to their husband or partner, they were very keen to conceal their status from all others, including family members. Parents and carers with an HIV-positive child were not willing to disclose this status to the child or to others. Understanding the different rationales for concealment would help policy makers and programme managers to develop more appropriate care management strategies and train care providers to assist clients in accessing care and support without disrupting their lives.
Original languageEnglish
Pages (from-to)933-946
Number of pages14
JournalCulture, Health and Sexuality
Volume17
Issue number8
Early online date23 Feb 2015
DOIs
Publication statusPublished - 14 Sep 2015

Keywords

  • concealment
  • stigma
  • HIV
  • treatment adherence
  • India

Fingerprint

Dive into the research topics of '‘I am doing fine only because I have not told anyone’: the necessity of concealment in the lives of people living with HIV in India'. Together they form a unique fingerprint.

Cite this