Identifiability and privacy in pluripotent stem cell research

Rosario Isasi, Peter W Andrews, Jay M Baltz, Annelien L Bredenoord, Paul Burton, Ing-Ming Chiu, Sara Chandros Hull, Ji-Won Jung, Andreas Kurtz, Geoffrey Lomax, Tenneille Ludwig, Michael McDonald, Clive Morris, Huck Hui Ng, Heather Rooke, Alka Sharma, Glyn N Stacey, Clare Williams, Fanyi Zeng, Bartha Maria Knoppers

Research output: Contribution to journalArticle (Academic Journal)peer-review

36 Citations (Scopus)


Data sharing is an essential element of research; however, recent scientific and social developments have challenged conventional methods for protecting privacy. Here we provide guidance for determining data sharing thresholds for human pluripotent stem cell research aimed at a wide range of stakeholders, including research consortia, biorepositories, policy-makers, and funders.

Original languageEnglish
Pages (from-to)427-30
Number of pages4
JournalCell Stem Cell
Issue number4
Publication statusPublished - 3 Apr 2014

Bibliographical note

Copyright © 2014 Elsevier Inc. All rights reserved.


  • Humans
  • Pluripotent Stem Cells
  • Privacy
  • Stem Cell Research


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