Identifiability and privacy in pluripotent stem cell research

Rosario Isasi; Peter W Andrews; Jay M Baltz; Annelien L Bredenoord; Paul Burton; Ing-Ming Chiu; Sara Chandros Hull; Ji-Won Jung; Andreas Kurtz; Geoffrey Lomax; Tenneille Ludwig; Michael McDonald; Clive Morris; Huck Hui Ng; Heather Rooke; Alka Sharma; Glyn N Stacey; Clare Williams; Fanyi Zeng; Bartha Maria Knoppers

doi:10.1016/j.stem.2014.03.014

Identifiability and privacy in pluripotent stem cell research

Rosario Isasi, Peter W Andrews, Jay M Baltz, Annelien L Bredenoord, Paul Burton, Ing-Ming Chiu, Sara Chandros Hull, Ji-Won Jung, Andreas Kurtz, Geoffrey Lomax, Tenneille Ludwig, Michael McDonald, Clive Morris, Huck Hui Ng, Heather Rooke, Alka Sharma, Glyn N Stacey, Clare Williams, Fanyi Zeng, Bartha Maria Knoppers

Bristol Medical School (PHS)

Research output: Contribution to journal › Article (Academic Journal) › peer-review

40 Citations (Scopus)

Abstract

Data sharing is an essential element of research; however, recent scientific and social developments have challenged conventional methods for protecting privacy. Here we provide guidance for determining data sharing thresholds for human pluripotent stem cell research aimed at a wide range of stakeholders, including research consortia, biorepositories, policy-makers, and funders.

Original language	English
Pages (from-to)	427-30
Number of pages	4
Journal	Cell Stem Cell
Volume	14
Issue number	4
DOIs	https://doi.org/10.1016/j.stem.2014.03.014
Publication status	Published - 3 Apr 2014

Bibliographical note

Keywords

Humans
Pluripotent Stem Cells
Privacy
Stem Cell Research

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Isasi, R., Andrews, P. W., Baltz, J. M., Bredenoord, A. L., Burton, P., Chiu, I.-M., Hull, S. C., Jung, J.-W., Kurtz, A., Lomax, G., Ludwig, T., McDonald, M., Morris, C., Ng, H. H., Rooke, H., Sharma, A., Stacey, G. N., Williams, C., Zeng, F., & Knoppers, B. M. (2014). Identifiability and privacy in pluripotent stem cell research. Cell Stem Cell, 14(4), 427-30. https://doi.org/10.1016/j.stem.2014.03.014

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abstract = "Data sharing is an essential element of research; however, recent scientific and social developments have challenged conventional methods for protecting privacy. Here we provide guidance for determining data sharing thresholds for human pluripotent stem cell research aimed at a wide range of stakeholders, including research consortia, biorepositories, policy-makers, and funders.",

keywords = "Humans, Pluripotent Stem Cells, Privacy, Stem Cell Research",

author = "Rosario Isasi and Andrews, \{Peter W\} and Baltz, \{Jay M\} and Bredenoord, \{Annelien L\} and Paul Burton and Ing-Ming Chiu and Hull, \{Sara Chandros\} and Ji-Won Jung and Andreas Kurtz and Geoffrey Lomax and Tenneille Ludwig and Michael McDonald and Clive Morris and Ng, \{Huck Hui\} and Heather Rooke and Alka Sharma and Stacey, \{Glyn N\} and Clare Williams and Fanyi Zeng and Knoppers, \{Bartha Maria\}",

year = "2014",

month = apr,

day = "3",

doi = "10.1016/j.stem.2014.03.014",

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Isasi, R, Andrews, PW, Baltz, JM, Bredenoord, AL, Burton, P, Chiu, I-M, Hull, SC, Jung, J-W, Kurtz, A, Lomax, G, Ludwig, T, McDonald, M, Morris, C, Ng, HH, Rooke, H, Sharma, A, Stacey, GN, Williams, C, Zeng, F & Knoppers, BM 2014, 'Identifiability and privacy in pluripotent stem cell research', Cell Stem Cell, vol. 14, no. 4, pp. 427-30. https://doi.org/10.1016/j.stem.2014.03.014

TY - JOUR

T1 - Identifiability and privacy in pluripotent stem cell research

AU - Isasi, Rosario

AU - Andrews, Peter W

AU - Baltz, Jay M

AU - Bredenoord, Annelien L

AU - Burton, Paul

AU - Chiu, Ing-Ming

AU - Hull, Sara Chandros

AU - Jung, Ji-Won

AU - Kurtz, Andreas

AU - Lomax, Geoffrey

AU - Ludwig, Tenneille

AU - McDonald, Michael

AU - Morris, Clive

AU - Ng, Huck Hui

AU - Rooke, Heather

AU - Sharma, Alka

AU - Stacey, Glyn N

AU - Williams, Clare

AU - Zeng, Fanyi

AU - Knoppers, Bartha Maria

PY - 2014/4/3

Y1 - 2014/4/3

N2 - Data sharing is an essential element of research; however, recent scientific and social developments have challenged conventional methods for protecting privacy. Here we provide guidance for determining data sharing thresholds for human pluripotent stem cell research aimed at a wide range of stakeholders, including research consortia, biorepositories, policy-makers, and funders.

AB - Data sharing is an essential element of research; however, recent scientific and social developments have challenged conventional methods for protecting privacy. Here we provide guidance for determining data sharing thresholds for human pluripotent stem cell research aimed at a wide range of stakeholders, including research consortia, biorepositories, policy-makers, and funders.

KW - Humans

KW - Pluripotent Stem Cells

KW - Privacy

KW - Stem Cell Research

U2 - 10.1016/j.stem.2014.03.014

DO - 10.1016/j.stem.2014.03.014

M3 - Article (Academic Journal)

C2 - 24702994

SN - 1875-9777

VL - 14

SP - 427

EP - 430

JO - Cell Stem Cell

JF - Cell Stem Cell

IS - 4

ER -

Identifiability and privacy in pluripotent stem cell research

Abstract

Bibliographical note

Keywords

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