Incorporating the patient perspective into outcome assessment in rheumatoid arthritis - Progress at OMERACT 7

John R. Kirwan*, Sarah E. Hewlett, Turid Heiberg, Rod A. Hughes, Maggie Carr, Maggie Hehir, Tore K. Kvien, Patricia Minnock, Stanton P. Newman, Enid M. Quest, Erik Taal, Janney Wale

*Corresponding author for this work

Research output: Contribution to journalArticle (Academic Journal)peer-review

203 Citations (Scopus)


The Patient Perspective Workshop at OMERACT 7 addressed the question of assessing the outcomes of intervention in rheumatoid arthritis (RA) from the perspective of those who experience the disease. A particular emphasis at this workshop was placed on fatigue, but other areas included well-being, real-time assessment, patient priorities, and needs in early and late disease. Through a series of overview presentations, discussion groups, and plenary sessions, workshop participants (who included 19 patients) clarified what is known and what are the outstanding issues for future research. The importance of further work on clarifying the validity of fatigue measurements in RA has been confirmed, and with at least one suitable instrument available there will be strong pressure to include fatigue in a redefined core set of outcome measures in RA. In the other 4 areas covered there are important issues that can be addressed by enquiry and experiment and that together provide a challenging research agenda. At the final plenary session the OMERACT conference endorsed, by a large majority, the proposal that fatigue may warrant consideration for inclusion in the OMERACT core set for RA.

Original languageEnglish
Pages (from-to)2250-2256
Number of pages7
JournalJournal of Rheumatology
Issue number11
Publication statusPublished - 1 Nov 2005


  • Fatigue
  • Patient Priorities
  • Real-time assessment
  • Well-being


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