Intelligibility in 3-Year-Olds With Cleft Lip and/or Palate Using the Intelligibility in Context Scale: Findings from the Cleft Collective Cohort Study

Miriam Seifert, Amy Davies, Sam Harding, Sharynne McLeod, Yvonne Wren

Research output: Contribution to journalArticle (Academic Journal)peer-review

10 Citations (Scopus)


OBJECTIVE: To provide comparison data on the Intelligibility in Context Scale (ICS) for a sample of 3-year-old English-speaking children born with any cleft type.

DESIGN: Questionnaire data from the Cleft Collective Cohort Study were used. Descriptive and inferential statistics were carried out to determine difference according to children's cleft type and syndromic status.

PARTICIPANTS: A total of 412 children born with cleft lip and/or palate whose mothers had completed the ICS when their child was 3 years old.

MAIN OUTCOME MEASURE(S): Mothers' rating of their children's intelligibility using the ICS.

RESULTS: The average ICS score for the total sample was 3.75 (sometimes-usually intelligible; standard deviation [SD] = 0.76, 95% CIs = 3.68-3.83) of a possible score of 5 (always intelligible). Children's speech was reported to be most intelligible to their mothers (mean = 4.33, SD = 0.61, 95% CIs = 4.27-4.39) and least intelligible to strangers (mean = 3.36, SD = 1.00, 95% CIs = 3.26-3.45). There was strong evidence (P < .001) for a difference in intelligibility between children with cleft lip only (n = 104, mean = 4.13, SD = 0.62, 95% CIs = 4.01-4.25) and children with any form of cleft palate (n = 308, mean = 3.63, SD = 0.76, 95% CIs = 3.52-3.71). Children born with cleft palate with or without cleft lip and an identified syndrome were rated as less intelligible (n = 63, mean = 3.28, SD = 0.85, 95% CIs = 3.06-3.49) compared to children who did not have a syndrome (n = 245, mean = 3.72, SD = 0.71, 95% CIs = 3.63-3.81).

CONCLUSIONS: These results provide preliminary comparative data for clinical services using the outcome measures recommended by the International Consortium for Health Outcomes Measurement.

Original languageEnglish
Pages (from-to)1178-1189
Number of pages12
JournalCleft Palate-Craniofacial Journal
Issue number9
Early online date3 Feb 2021
Publication statusPublished - Sept 2021

Bibliographical note

Funding Information:
The authors would like to thank the families who participated in the Cleft Collective Cohort Study, the UK NHS cleft teams, The Scar Free Foundation and The Cleft Collective team, who helped facilitate the study. This research has been conducted using The Cleft Collective Resource under Application Number CC-009. The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: Funding for the Cleft Collective Cohort Study has been awarded by the UK charity The Scar Free Foundation, formerly known as The Healing Foundation, and the University of Bristol. The authors are also grateful to The Underwood Trust who funded this specific work.

Publisher Copyright:
© 2021, American Cleft Palate-Craniofacial Association.


Dive into the research topics of 'Intelligibility in 3-Year-Olds With Cleft Lip and/or Palate Using the Intelligibility in Context Scale: Findings from the Cleft Collective Cohort Study'. Together they form a unique fingerprint.

Cite this