Managing fatigue after cancer treatment: development of RESTORE, a web-based resource to support self-management

C Foster, L Calman, C Grimmett, M Breckons, P Cotterell, L Yardley, J Joseph, S Hughes, R Jones, C Leonidou, J Armes, L Batehup, J Corner, D Fenlon, E Lennan, C Morris, A Neylon, E Ream, L Turner, A Richardson

Research output: Contribution to journalArticle (Academic Journal)peer-review

Abstract

OBJECTIVE: The aim of this study is to co-create an evidence-based and theoretically informed web-based intervention (RESTORE) designed to enhance self-efficacy to live with cancer-related fatigue (CRF) following primary cancer treatment.

METHODS: A nine-step process informed the development of the intervention: (1) review of empirical literature; (2) review of existing patient resources; (3) establish theoretical framework; (4) establish design team with expertise in web-based interventions, CRF and people affected by cancer; (5) develop prototype intervention; (6) user testing phase 1; (7) refinement of prototype; (8) user testing phase 2; and (9) develop final intervention.

RESULTS: Key stakeholders made a critical contribution at every step of intervention development, and user testing, which involved an iterative process and resulted in the final intervention. The RESTORE intervention has five sessions; sessions 1 and 2 include an introduction to CRF and goal setting. Sessions 3-5 can be tailored to user preference and are designed to cover areas of life where CRF may have an impact: home and work life, personal relationships and emotional adjustment.

CONCLUSIONS: It is feasible to systematically 'co-create' an evidence-based and theory-driven web-based self-management intervention to support cancer survivors living with the consequences of cancer and its treatment. This is the first account of the development of a web-based intervention to support self-efficacy to manage CRF. An exploratory trial to test the feasibility and acceptability of RESTORE is now warranted.

Original languageEnglish
Pages (from-to)940-9
Number of pages10
JournalPsycho-Oncology
Volume24
Issue number8
DOIs
Publication statusPublished - Aug 2015

Bibliographical note

Copyright © 2015 John Wiley & Sons, Ltd.

Keywords

  • Fatigue/etiology
  • Female
  • Humans
  • Internet
  • Male
  • Neoplasms/therapy
  • Self Care/methods
  • Self Efficacy

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