Measuring capability wellbeing in adults at different stages of life for use in economic evaluation of health and care interventions: a qualitative investigation in people requiring kidney care

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Abstract

Purpose
Capability wellbeing measures, such as the ICECAP measures, have been proposed for use in economic evaluations to capture broader outcomes of health and care interventions. The ICECAP measures have been developed to reflect capabilities at different stages of life. Some patient groups include patients of different ages and at different stages of life, so it is not always apparent which ICECAP measure is most relevant. This study explores the impact of age and life stage on completion, where both ICECAP-A and ICECAP-O were completed by the same patient.

Methods
A think-aloud study, and an associated semi-structured interview were conducted with people receiving kidney care as a renal outpatient, kidney transplant outpatient, or through receiving facility-based haemodialysis. Qualitative analysis focused on (1) differences in responses across measures by individuals, where attributes had conceptual overlap, (2) key factors in self-reported capability levels, and (3) measure preference.

Results
Thirty participants were included in the study, with a mix of older and younger adults. Attributes with similar wording across measures produced similar responses compared to attributes where wording differed. Age and health were key factors for self-reported capability levels. ICECAP-A was slightly preferred overall, including by older adults.

Conclusion
This study suggests use of ICECAP-A in patients with certain chronic health conditions that include a mix of adults across the life course. This study highlights the importance of considering the stage of life when using capability measures and in economic evaluations of health and care interventions more generally.
Original languageEnglish
Pages (from-to)2863-2873
Number of pages11
JournalQuality of Life Research
Volume30
Issue number10
Early online date11 May 2021
DOIs
Publication statusPublished - Oct 2021

Bibliographical note

Funding Information:
We are grateful to all participants for taking part in this research project and Louise Hawkins for her help in recruiting participants. We would like to thank those who attended the International Health Economics Association (iHEA) Congress in Basel, Switzerland in July 2019, where a previous version of this work was presented.

Funding Information:
Data collection was supported by a post-doctoral fellowship co-funded by the National Institute for Health Research (NIHR) Collaboration for Leadership in Applied Health Research and Care West (NIHR CLAHRC West) and the UK Renal Registry. Analysis and drafting of the paper by PM, SH and JC was supported through a Wellcome Trust Investigator Award (205384/Z/16/Z).

Publisher Copyright:
© 2021, The Author(s).

Keywords

  • health economics
  • patient reported outcome measures
  • ICECAP-A
  • ICECAP-O
  • life course

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