Medical Certificates of Cause of Death for people with intellectual disabilities: A systematic literature review

Fred Dunwoodie Stirton*, Pauline Heslop

*Corresponding author for this work

Research output: Contribution to journalArticle (Academic Journal)peer-review

6 Citations (Scopus)
347 Downloads (Pure)

Abstract

Background: Health inequalities exist for people with intellectual disabilities (ID). Mortality studies can help reduce inequalities by informing public policy through better understanding causes of death and co-morbidities. Mortality studies often rely on Medical Certificates of Cause of Death (MCCD) for data.

Method: A systematic review was undertaken to identify the extent and nature of issues in recording causes of death for people with ID on MCCD.

Results: 15 of the 25 articles included in the literature review raised concerns about the accuracy of MCCD in identifying the cause(s) of death of people with ID. The most frequent issues were the underreporting of ID on MCCD, and listing ID or an associated condition as an underlying cause of death.

Conclusions: The prevalence of concerns about the accuracy and reliability of MCCD for people with ID raises questions about the validity of mortality data based on MCCD.
Original languageEnglish
Pages (from-to)659-668
Number of pages10
JournalJournal of Applied Research in Intellectual Disabilities
Volume31
Issue number5
Early online date24 Mar 2018
DOIs
Publication statusPublished - Aug 2018

Keywords

  • intellectual disabilities
  • Medical Certificate of Cause of Death
  • mortality

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