Projects per year
Abstract
Background: Health inequalities exist for people with intellectual disabilities (ID). Mortality studies can help reduce inequalities by informing public policy through better understanding causes of death and co-morbidities. Mortality studies often rely on Medical Certificates of Cause of Death (MCCD) for data.
Method: A systematic review was undertaken to identify the extent and nature of issues in recording causes of death for people with ID on MCCD.
Results: 15 of the 25 articles included in the literature review raised concerns about the accuracy of MCCD in identifying the cause(s) of death of people with ID. The most frequent issues were the underreporting of ID on MCCD, and listing ID or an associated condition as an underlying cause of death.
Conclusions: The prevalence of concerns about the accuracy and reliability of MCCD for people with ID raises questions about the validity of mortality data based on MCCD.
Method: A systematic review was undertaken to identify the extent and nature of issues in recording causes of death for people with ID on MCCD.
Results: 15 of the 25 articles included in the literature review raised concerns about the accuracy of MCCD in identifying the cause(s) of death of people with ID. The most frequent issues were the underreporting of ID on MCCD, and listing ID or an associated condition as an underlying cause of death.
Conclusions: The prevalence of concerns about the accuracy and reliability of MCCD for people with ID raises questions about the validity of mortality data based on MCCD.
| Original language | English |
|---|---|
| Pages (from-to) | 659-668 |
| Number of pages | 10 |
| Journal | Journal of Applied Research in Intellectual Disabilities |
| Volume | 31 |
| Issue number | 5 |
| Early online date | 24 Mar 2018 |
| DOIs | |
| Publication status | Published - Aug 2018 |
Keywords
- intellectual disabilities
- Medical Certificate of Cause of Death
- mortality
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Dive into the research topics of 'Medical Certificates of Cause of Death for people with intellectual disabilities: A systematic literature review'. Together they form a unique fingerprint.Projects
- 1 Finished
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LeDeR: National LD Mortality Review Programme
Heslop, P. (Principal Investigator), Wistow, A. R. (Manager), Allen, C. J. (Other ), Avis-Ockwell, M. J. (Administrator), Calkin, R. A. (Other ), Huxor, A. P. (Researcher), Burnett, A. (Administrator), Hanford, D. W. (Other ), Cook, N. M. (Administrator), Gielnik, K. T. (Administrator) & Farr, A. M. (Administrator)
1/06/15 → 31/05/20
Project: Research