Mortality of people with intellectual disabilities in England: A comparison of data from existing sources

Pauline Heslop, Gyles Glover

    Research output: Contribution to journalArticle (Academic Journal)peer-review

    32 Citations (Scopus)
    360 Downloads (Pure)

    Abstract

    Background

    At present, there is limited statistical information about mortality of people with intellectual disabilities in England. This study explores the data that are currently available.
    Materials and methods

    Four recent sources of data about mortality of people with intellectual disabilities in England are reviewed: the Confidential Inquiry into Premature Deaths of People with intellectual disabilities (CIPOLD); the 2013 Joint Health and Social Care Intellectual Disability Self-assessment Exercise; local registers of people with intellectual disability; and analysis of Cause of Death certificates.
    Results

    Available data confirm that people with intellectual disability have a shorter lifespan and increased risk of early death when compared with the general population. The standardized mortality rate for people with intellectual disabilities is approximately twice that of the general population in England, with little indication of any reduction in this over time.
    Conclusions

    Comprehensive data about mortality of people with intellectual disabilities that take account of the age and sex distribution of the population are currently lacking in England. Existing data suggest persistent inequalities between people with intellectual disabilities and the general population. There is an urgent need for better monitoring mechanisms and actions to address these.
    Original languageEnglish
    Pages (from-to)414-422
    JournalJournal of Applied Research in Intellectual Disabilities
    Volume28
    Issue number5
    Early online date9 Aug 2015
    DOIs
    Publication statusPublished - Sep 2015

    Bibliographical note

    Date of Acceptance: 22/04/2015

    Keywords

    • England
    • intellectual disabilities
    • learning disabilities
    • mortality data

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