Needs of Adolescents and Young Adults with Neurodevelopmental Disorders: Comparisons of Young People and Parent Perspectives

Hanna Eklund, James Findon, Tim Cadman, Hannah Hayward, Declan Murphy, Philip Asherson, Karen Glaser, Kiriakos Xenitidis

Research output: Contribution to journalArticle (Academic Journal)peer-review

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Abstract

This study used the Camberwell Assessment of Need for adults with Developmental and Intellectual Disabilities (CANDID) to examine the social, physical health and mental health needs of 168 young people (aged 14-24 years) with neurodevelopmental disorders and compared young person and parent ratings of need. Agreement was poor in 21 out of 25 domains. Parents consistently reported higher levels of need than young people in the majority of domains although young people with ADHD reported significantly more needs in physical health, eyesight/hearing, seizures, other mental health problems and safety of others than their parents. Both parent and young person perspectives of needs are necessary to ensure that needs that are predictive of current or future poor outcomes are not missed.

Original languageEnglish
Pages (from-to)83-91
Number of pages9
JournalJournal of Autism and Developmental Disorders
Volume48
Issue number1
Early online date11 Sep 2017
DOIs
Publication statusPublished - Jan 2018

Keywords

  • Neurodevelopmental disorders
  • ADHD
  • ASD
  • Needs assessment
  • Young adulthood

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