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Neglected bodily senses in women living with vertebral fracture: a focus group study

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Neglected bodily senses in women living with vertebral fracture : a focus group study. / Drew, Sarah; Clark, Emma; Al-Sari, Usama; Moore, Andrew; Gooberman-Hill, Rachael.

In: Rheumatology, 23.07.2019.

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@article{ea3a5ddf799649c296dcad9366dbd03f,
title = "Neglected bodily senses in women living with vertebral fracture: a focus group study",
abstract = "ObjectiveOlder women are at particular risk of osteoporosis. Among women with osteoporosis, fractures of the vertebra (vertebral fracture) are common, hard to detect and associated with risk of further fracture. Identifying vertebral fracture in a timely manner allows instigation of preventive measures to reduce the risk of further fracture. Although detection of vertebral fracture requires spinal radiograph, many women do not receive referral. To begin development of a screening tool to identify women in need of referral we undertook a qualitative study to characterize women’s experiences of vertebral fracture, using Eccleston’s ‘Ten Neglected Bodily Senses’.MethodsFour qualitative focus groups were conducted with women who had been diagnosed with vertebral fracture (n = 19, age 60–91 years). Data were audio-recorded, transcribed and analysed thematically using the ‘Ten Neglected Bodily Senses’.ResultsWomen’s experiences of vertebral fractures related to seven senses: pain, movement, fatigue, balance, pressure, appetite and breathing. Pain was the dominant sense and all participants explained how pain increased with activity, reaching a crescendo, and described strategies to minimize this disruption. Most participants had become physically shorter, making some feel ‘squashed’, putting pressure on other body parts. Some described appetite loss or a sense of restricted breathing. Participants experienced a sense of being ‘pulled’ forwards, impacting on balance and exacerbating fear of falling.ConclusionThe study found senses that have not been previously described in the experiences of women with vertebral fracture. These will be used to inform the design of a new screening tool for use in primary care.",
keywords = "vertebral fracture, osteoporosis, qualitative research, pain, screening",
author = "Sarah Drew and Emma Clark and Usama Al-Sari and Andrew Moore and Rachael Gooberman-Hill",
year = "2019",
month = "7",
day = "23",
doi = "10.1093/rheumatology/kez249",
language = "English",
journal = "Rheumatology",
issn = "1462-0324",
publisher = "Oxford University Press",

}

RIS - suitable for import to EndNote

TY - JOUR

T1 - Neglected bodily senses in women living with vertebral fracture

T2 - a focus group study

AU - Drew, Sarah

AU - Clark, Emma

AU - Al-Sari, Usama

AU - Moore, Andrew

AU - Gooberman-Hill, Rachael

PY - 2019/7/23

Y1 - 2019/7/23

N2 - ObjectiveOlder women are at particular risk of osteoporosis. Among women with osteoporosis, fractures of the vertebra (vertebral fracture) are common, hard to detect and associated with risk of further fracture. Identifying vertebral fracture in a timely manner allows instigation of preventive measures to reduce the risk of further fracture. Although detection of vertebral fracture requires spinal radiograph, many women do not receive referral. To begin development of a screening tool to identify women in need of referral we undertook a qualitative study to characterize women’s experiences of vertebral fracture, using Eccleston’s ‘Ten Neglected Bodily Senses’.MethodsFour qualitative focus groups were conducted with women who had been diagnosed with vertebral fracture (n = 19, age 60–91 years). Data were audio-recorded, transcribed and analysed thematically using the ‘Ten Neglected Bodily Senses’.ResultsWomen’s experiences of vertebral fractures related to seven senses: pain, movement, fatigue, balance, pressure, appetite and breathing. Pain was the dominant sense and all participants explained how pain increased with activity, reaching a crescendo, and described strategies to minimize this disruption. Most participants had become physically shorter, making some feel ‘squashed’, putting pressure on other body parts. Some described appetite loss or a sense of restricted breathing. Participants experienced a sense of being ‘pulled’ forwards, impacting on balance and exacerbating fear of falling.ConclusionThe study found senses that have not been previously described in the experiences of women with vertebral fracture. These will be used to inform the design of a new screening tool for use in primary care.

AB - ObjectiveOlder women are at particular risk of osteoporosis. Among women with osteoporosis, fractures of the vertebra (vertebral fracture) are common, hard to detect and associated with risk of further fracture. Identifying vertebral fracture in a timely manner allows instigation of preventive measures to reduce the risk of further fracture. Although detection of vertebral fracture requires spinal radiograph, many women do not receive referral. To begin development of a screening tool to identify women in need of referral we undertook a qualitative study to characterize women’s experiences of vertebral fracture, using Eccleston’s ‘Ten Neglected Bodily Senses’.MethodsFour qualitative focus groups were conducted with women who had been diagnosed with vertebral fracture (n = 19, age 60–91 years). Data were audio-recorded, transcribed and analysed thematically using the ‘Ten Neglected Bodily Senses’.ResultsWomen’s experiences of vertebral fractures related to seven senses: pain, movement, fatigue, balance, pressure, appetite and breathing. Pain was the dominant sense and all participants explained how pain increased with activity, reaching a crescendo, and described strategies to minimize this disruption. Most participants had become physically shorter, making some feel ‘squashed’, putting pressure on other body parts. Some described appetite loss or a sense of restricted breathing. Participants experienced a sense of being ‘pulled’ forwards, impacting on balance and exacerbating fear of falling.ConclusionThe study found senses that have not been previously described in the experiences of women with vertebral fracture. These will be used to inform the design of a new screening tool for use in primary care.

KW - vertebral fracture

KW - osteoporosis

KW - qualitative research

KW - pain

KW - screening

U2 - 10.1093/rheumatology/kez249

DO - 10.1093/rheumatology/kez249

M3 - Article

C2 - 31335949

JO - Rheumatology

JF - Rheumatology

SN - 1462-0324

M1 - kez249

ER -