Our year with the glass: expectations, letdowns and ethical dilemmas of technology trials with vulnerable people

Roisin McNaney, John Vines, Ivan Poliakov, Amey Holden, Peter Wright, Patrick Olivier

Research output: Contribution to journalArticle (Academic Journal)peer-review

Abstract

n this paper, we reflect upon the ethical dilemmas faced during our research exploring the potential of Google Glass as a self-care technology for people with Parkinson's. Our project involved two stages of research: an initial study that explored the overall acceptability and responses of people with Parkinson's to the technology; and a follow-up study that examined participants’ experiences of the technology in more depth through further trials and a series of co-design activities. While our first trials were successful, leading to publication and subsequent local and national publicity, our follow-up trials were hampered by technical problems that were often out of our control. We highlight how participants’ heightened expectations prior to the second trial, as a result of public discourse around the project, were difficult to meet. This led to our participants articulating their frustrations, feelings of lowered self-confidence, and …
Original languageEnglish
Pages (from-to)27
Number of pages44
JournalInteracting with Computers
Volume29
Issue number1
Publication statusPublished - 2017

Structured keywords

  • Digital Health

Keywords

  • Digital Health
  • Parkinson's disease
  • Google Glass
  • Ethics

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