Overview of the patient perspective at OMERACT 10--conceptualizing methods for developing patient-reported outcomes

Kirwan J R, PS Tugwell

Research output: Contribution to journalArticle (Academic Journal)peer-review

28 Citations (Scopus)

Abstract

This overview draws out the main conclusions from the 4 workshops focused on incorporating the patient perspective into outcome assessment at the 10th Outcome Measures in Rheumatology (OMERACT 10) conference. They raised methodological issues about the choice of outcome domains to include in clinical trials, the development or choice of instruments to measure these domains, and the way these instruments might capture the impact of a disease and its treatment. The need to develop a more rigorous conceptual model of quantifying the way conditions affect health, and the need to ensure patients are directly involved in the decisions about domains and instruments, emerged clearly. The OMERACT participants voted to develop guidelines for domain and instrument selection, and conceptual and experimental work will be brought forward to revise and upgrade the OMERACT Filter.
Translated title of the contributionOverview of the patient perspective at OMERACT 10--conceptualizing methods for developing patient-reported outcomes
Original languageEnglish
Pages (from-to)1699 - 1701
Number of pages3
JournalJournal of Rheumatology
Volume38(8)
Issue number8
DOIs
Publication statusPublished - Aug 2011

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