Patient and public involvement within epidemiological studies of long COVID in the UK

Ash Routen; Lauren O'Mahoney; Olalekan Lee Aiyegbusi; Yvonne Alder; Amitava Banerjee; Lewis Buckland; Chris Brightling; Melanie Calvert; Jenny Camaradou; Nishi Chaturvedi; Amy Chong; Emma Dalrymple; Rosalind M Eggo; Paul Elliott; Rachael A Evans; Andy Gibson; Shamil Haroon; Emily Herrett; Linzy Houchen-Wolloff; Sarah E Hughes; Flic Jeyes; Karen Matthews; Christel McMullan; Jessica Morley; Roz Shafran; Nikki Smith; David Stanton; Terence Stephenson; Jonathan Sterne; Grace M Turner; Helen Ward; Kamlesh Khunti

doi:10.1038/s41591-023-02251-5

Patient and public involvement within epidemiological studies of long COVID in the UK

Ash Routen^*, Lauren O'Mahoney, Olalekan Lee Aiyegbusi, Yvonne Alder, Amitava Banerjee, Lewis Buckland, Chris Brightling, Melanie Calvert, Jenny Camaradou, Nishi Chaturvedi, Amy Chong, Emma Dalrymple, Rosalind M Eggo, Paul Elliott, Rachael A Evans, Andy Gibson, Shamil Haroon, Emily Herrett, Linzy Houchen-Wolloff, Sarah E HughesFlic Jeyes, Karen Matthews, Christel McMullan, Jessica Morley, Roz Shafran, Nikki Smith, David Stanton, Terence Stephenson, Jonathan Sterne, Grace M Turner, Helen Ward, Kamlesh Khunti

^*Corresponding author for this work

Research output: Contribution to journal › Letter (Academic Journal) › peer-review

6 Citations (Scopus)

Original language	English
Pages (from-to)	771-773
Number of pages	3
Journal	Nature Medicine
Volume	29
Issue number	4
Early online date	17 Mar 2023
DOIs	https://doi.org/10.1038/s41591-023-02251-5
Publication status	Published - 1 Apr 2023

Bibliographical note

Funding Information:
Authors Y.A., L.B., A.C., F.J., J.C., K.S. and N.S. acted as patient and public contributors; N.S. is an expert by lived experience and provides PPI to the REACT-LC and PHOSP-COVID studies. Some of the studies described in this manuscript were supported by the National Institute for Health and Care Research (NIHR) (STIMULATE-ICP: COV-LT2-0043; OPEN Prompt: COV-LT2-0073) or jointly by NIHR and UK Research and Innovation (UKRI) (TLC: COV-LT-0013; CLoCk: COV-LT-0022; REACT-LC: COV-LT-0040; CONVALESCENCE: COV-LT-0009). PHOSP-COVID is jointly funded by a grant from the MRC-UKRI and the Department of Health and Social Care through the NIHR rapid response panel to tackle COVID-19 (MR/V027859/1 and COV0319). The COVID-19 Longitudinal Health and Wellbeing National Core Study was funded by the MRC and UKRI (MC_PC_20030). The views expressed in this article are those of the author(s) and not necessarily those of UKRI, MRC, the NIHR, or the Department of Health and Social Care.

Keywords

Humans
COVID-19/epidemiology
Post-Acute COVID-19 Syndrome
SARS-CoV-2
Epidemiologic Studies
United Kingdom/epidemiology

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Routen, A., O'Mahoney, L., Aiyegbusi, O. L., Alder, Y., Banerjee, A., Buckland, L., Brightling, C., Calvert, M., Camaradou, J., Chaturvedi, N., Chong, A., Dalrymple, E., Eggo, R. M., Elliott, P., Evans, R. A., Gibson, A., Haroon, S., Herrett, E., Houchen-Wolloff, L., ... Khunti, K. (2023). Patient and public involvement within epidemiological studies of long COVID in the UK. Nature Medicine, 29(4), 771-773. https://doi.org/10.1038/s41591-023-02251-5

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title = "Patient and public involvement within epidemiological studies of long COVID in the UK",

keywords = "Humans, COVID-19/epidemiology, Post-Acute COVID-19 Syndrome, SARS-CoV-2, Epidemiologic Studies, United Kingdom/epidemiology",

author = "Ash Routen and Lauren O'Mahoney and Aiyegbusi, {Olalekan Lee} and Yvonne Alder and Amitava Banerjee and Lewis Buckland and Chris Brightling and Melanie Calvert and Jenny Camaradou and Nishi Chaturvedi and Amy Chong and Emma Dalrymple and Eggo, {Rosalind M} and Paul Elliott and Evans, {Rachael A} and Andy Gibson and Shamil Haroon and Emily Herrett and Linzy Houchen-Wolloff and Hughes, {Sarah E} and Flic Jeyes and Karen Matthews and Christel McMullan and Jessica Morley and Roz Shafran and Nikki Smith and David Stanton and Terence Stephenson and Jonathan Sterne and Turner, {Grace M} and Helen Ward and Kamlesh Khunti",

note = "Funding Information: Authors Y.A., L.B., A.C., F.J., J.C., K.S. and N.S. acted as patient and public contributors; N.S. is an expert by lived experience and provides PPI to the REACT-LC and PHOSP-COVID studies. Some of the studies described in this manuscript were supported by the National Institute for Health and Care Research (NIHR) (STIMULATE-ICP: COV-LT2-0043; OPEN Prompt: COV-LT2-0073) or jointly by NIHR and UK Research and Innovation (UKRI) (TLC: COV-LT-0013; CLoCk: COV-LT-0022; REACT-LC: COV-LT-0040; CONVALESCENCE: COV-LT-0009). PHOSP-COVID is jointly funded by a grant from the MRC-UKRI and the Department of Health and Social Care through the NIHR rapid response panel to tackle COVID-19 (MR/V027859/1 and COV0319). The COVID-19 Longitudinal Health and Wellbeing National Core Study was funded by the MRC and UKRI (MC_PC_20030). The views expressed in this article are those of the author(s) and not necessarily those of UKRI, MRC, the NIHR, or the Department of Health and Social Care. ",

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Routen, A, O'Mahoney, L, Aiyegbusi, OL, Alder, Y, Banerjee, A, Buckland, L, Brightling, C, Calvert, M, Camaradou, J, Chaturvedi, N, Chong, A, Dalrymple, E, Eggo, RM, Elliott, P, Evans, RA, Gibson, A, Haroon, S, Herrett, E, Houchen-Wolloff, L, Hughes, SE, Jeyes, F, Matthews, K, McMullan, C, Morley, J, Shafran, R, Smith, N, Stanton, D, Stephenson, T, Sterne, J, Turner, GM, Ward, H & Khunti, K 2023, 'Patient and public involvement within epidemiological studies of long COVID in the UK', Nature Medicine, vol. 29, no. 4, pp. 771-773. https://doi.org/10.1038/s41591-023-02251-5

TY - JOUR

T1 - Patient and public involvement within epidemiological studies of long COVID in the UK

AU - Routen, Ash

AU - O'Mahoney, Lauren

AU - Aiyegbusi, Olalekan Lee

AU - Alder, Yvonne

AU - Banerjee, Amitava

AU - Buckland, Lewis

AU - Brightling, Chris

AU - Calvert, Melanie

AU - Camaradou, Jenny

AU - Chaturvedi, Nishi

AU - Chong, Amy

AU - Dalrymple, Emma

AU - Eggo, Rosalind M

AU - Elliott, Paul

AU - Evans, Rachael A

AU - Gibson, Andy

AU - Haroon, Shamil

AU - Herrett, Emily

AU - Houchen-Wolloff, Linzy

AU - Hughes, Sarah E

AU - Jeyes, Flic

AU - Matthews, Karen

AU - McMullan, Christel

AU - Morley, Jessica

AU - Shafran, Roz

AU - Smith, Nikki

AU - Stanton, David

AU - Stephenson, Terence

AU - Sterne, Jonathan

AU - Turner, Grace M

AU - Ward, Helen

AU - Khunti, Kamlesh

N1 - Funding Information: Authors Y.A., L.B., A.C., F.J., J.C., K.S. and N.S. acted as patient and public contributors; N.S. is an expert by lived experience and provides PPI to the REACT-LC and PHOSP-COVID studies. Some of the studies described in this manuscript were supported by the National Institute for Health and Care Research (NIHR) (STIMULATE-ICP: COV-LT2-0043; OPEN Prompt: COV-LT2-0073) or jointly by NIHR and UK Research and Innovation (UKRI) (TLC: COV-LT-0013; CLoCk: COV-LT-0022; REACT-LC: COV-LT-0040; CONVALESCENCE: COV-LT-0009). PHOSP-COVID is jointly funded by a grant from the MRC-UKRI and the Department of Health and Social Care through the NIHR rapid response panel to tackle COVID-19 (MR/V027859/1 and COV0319). The COVID-19 Longitudinal Health and Wellbeing National Core Study was funded by the MRC and UKRI (MC_PC_20030). The views expressed in this article are those of the author(s) and not necessarily those of UKRI, MRC, the NIHR, or the Department of Health and Social Care.

PY - 2023/4/1

Y1 - 2023/4/1

KW - Humans

KW - COVID-19/epidemiology

KW - Post-Acute COVID-19 Syndrome

KW - SARS-CoV-2

KW - Epidemiologic Studies

KW - United Kingdom/epidemiology

U2 - 10.1038/s41591-023-02251-5

DO - 10.1038/s41591-023-02251-5

M3 - Letter (Academic Journal)

C2 - 36932242

SN - 1078-8956

VL - 29

SP - 771

EP - 773

JO - Nature Medicine

JF - Nature Medicine

IS - 4

ER -