Patient Perspective on outcomes in rheumatology - a position paper for OMERACT 9

John R. Kirwan, Stanton Newman, Peter S. Tugwell, George A. Wells

Research output: Contribution to journalArticle (Academic Journal)peer-review

34 Citations (Scopus)

Abstract

The inclusion of patient participants at OMERACT has resulted in direct incorporation of the patient perspective in the development of outcome assessments in rheumatology. Fatigue has been adopted as a recommended measure in all studies, and further work is now under way on the assessment of sleep, effective healthcare consumers, and the effects of psychological or educational interventions. This position paper draws this work together in preparation for the Patient Perspective Workshop at OMERACT 9, and introduces the concept that other core outcomes relevant to patients might be required in assessing interventions designed to help patients live with their disease. The Journal of Rheumatology

Translated title of the contributionPatient Perspective on outcomes in rheumatology - a position paper for OMERACT 9
Original languageEnglish
Pages (from-to)2067-2070
Number of pages4
JournalJournal of Rheumatology
Volume36
Issue number9
DOIs
Publication statusPublished - Sept 2009

Keywords

  • Consumers
  • Educational
  • Interventions
  • Outcomes
  • Psychological
  • Sleep

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