Patient Perspective on outcomes in rheumatology - a position paper for OMERACT 9

John R. Kirwan, Stanton Newman, Peter S. Tugwell, George A. Wells

    Research output: Contribution to journalArticle (Academic Journal)peer-review

    34 Citations (Scopus)

    Abstract

    The inclusion of patient participants at OMERACT has resulted in direct incorporation of the patient perspective in the development of outcome assessments in rheumatology. Fatigue has been adopted as a recommended measure in all studies, and further work is now under way on the assessment of sleep, effective healthcare consumers, and the effects of psychological or educational interventions. This position paper draws this work together in preparation for the Patient Perspective Workshop at OMERACT 9, and introduces the concept that other core outcomes relevant to patients might be required in assessing interventions designed to help patients live with their disease. The Journal of Rheumatology

    Translated title of the contributionPatient Perspective on outcomes in rheumatology - a position paper for OMERACT 9
    Original languageEnglish
    Pages (from-to)2067-2070
    Number of pages4
    JournalJournal of Rheumatology
    Volume36
    Issue number9
    DOIs
    Publication statusPublished - Sept 2009

    Keywords

    • Consumers
    • Educational
    • Interventions
    • Outcomes
    • Psychological
    • Sleep

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