Patient perspective workshop: moving towards OMERACT guidelines for choosing or developing instruments to measure patient-reported outcomes: moving towards OMERACT guidelines for choosing or developing instruments to measure patient-reported outcomes

Kirwan J R, JF Fries, SE Hewlett, RH Osborne, S Newman, S Ciciriello, MA van de Laar, EK Dures, P Minnock, T Heiberg, TC Sanderson, CA Flurey, AL Leong, P Montie, P Richards

Research output: Contribution to journalArticle (Academic Journal)peer-review

22 Citations (Scopus)

Abstract

The workshop Choosing or Developing Instruments held at the Outcome Measures in Rheumatology (OMERACT) 10 meeting was designed to help participants think about the underlying methods of instrument development. Conference pre-reading material and 3 brief introductory presentations elaborated the issues, and participants broke into discussion groups before reconvening to share insights, engage in a more general discussion of the issues, and vote on recommendations. Tradeoffs between using current imperfect measures and the long and complex process of developing new instruments were considered, together with the need for rigor in patient-reported outcome (PRO) instrument development. The main considerations for PRO instrument development were listed and a research agenda for action produced. As part of the agenda for action, it is recommended that researchers and patient partners work together to tackle these issues, and that OMERACT bring forward proposals for acceptable instrument development protocols that would meet an enhanced "Truth" statement in the OMERACT Filter.
Translated title of the contributionPatient perspective workshop: moving towards OMERACT guidelines for choosing or developing instruments to measure patient-reported outcomes
Original languageEnglish
Pages (from-to)1711 - 1715
Number of pages5
JournalJournal of Rheumatology
Volume38(8)
Issue number8
DOIs
Publication statusPublished - Aug 2011

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