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Patient Priorities in Relation to Surgery for Gastric Cancer: Qualitative Interviews with Gastric Cancer Surgery Patients to Inform the Development of a Core Outcome Set

Research output: Contribution to journalArticle

Original languageEnglish
Number of pages11
JournalBMJ Open
Volume10
Issue number2
DOIs
DateAccepted/In press - 21 Jan 2020
DatePublished (current) - 12 Feb 2020

Abstract

Objective
The reporting of outcomes in surgical trials for gastric cancer is inconsistent. The GASTROS study (GAstric Cancer Surgery TRials Reported Outcome Standardisation) aims to address this by developing a core outcome set (COS) for use in all future trials within this field. A COS should reflect the views of all stakeholders, including patients. We undertook a series of interviews to identify
outcomes important to patients which would be considered for inclusion in a COS.

Setting
All interviews took place within the United Kingdom. Interviews were carried out face-to-face at hospitals and cancer support centres or via the telephone.

Participants
Twenty participants at varying stages of recovery following surgery for gastric cancer with curative intent.

Design
Qualitative design using semi-structured interviews, supported by an interview guide which was iteratively modified; thematic analysis was used to explore patient priorities.

Results
Six themes enveloping 38 outcomes were identified; surviving and controlling cancer, technical aspects of surgery, adverse events from surgery, recovering from surgery, long-term problems following surgery and long-term life impact of surgery. The ‘most important’ patient priority was to be ‘cured of cancer’.

Conclusion
Surgical trials for gastric cancer should consider broader priorities of patients when choosing which outcomes to report. This study highlighted the importance of longer-term outcomes such as cancer survival. Outcomes identified in this study will be used to inform an international Delphi survey to develop a COS in this field.

    Research areas

  • surgical ontology, stomach neoplasms, outcome assessment, patient reported outcome measures, treatment outcome, outcome reporting

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    Rights statement: This is the final published version of the article (version of record). It first appeared online via BMJ Publishing Group at https://bmjopen.bmj.com/content/10/2/e034782 . Please refer to any applicable terms of use of the publisher.

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