Physical and Psychological Health of Family Carers Co-residing with an Adult Relative with an Intellectual Disability

Jillian M Powell, Vasiliki Totsika, Richard P Hastings

Research output: Contribution to journalArticle (Academic Journal)peer-review

Abstract

Background: Providing long- term care to an adult relative with intellectual disability can impact negatively on caregivers’ health and well- being.

Methods: Data were collected via online and postal questionnaires on 110 family car-ers’ physical and psychological health, family stress and perceived positive gains from caring. Psychological adaptation and carers’ satisfaction with available support were also examined.

Results: Study participants reported more health problems than general populations. Higher support needs of care recipients were associated with increased family stress. Carers being female were associated with lower family stress. Older age and better socio- economic position were associated with better psychological outcomes. Other associations were consistent with psychological adaption and perceived helpfulness of support buffering negative outcomes and facilitating positive gains from caring.

Conclusions: Family carers of adults with intellectual disability appear to experience poorer health outcome than population norms. Adaption to the caregiving role may buffer negative outcomes. Further large scale, population- based, longitudinal research is needed.
Original languageEnglish
Pages (from-to)191-202
Number of pages11
JournalJournal of applied research in intellectual disabilities : JARID
Volume2018;31
Issue number (Supp. 2)
DOIs
Publication statusPublished - 5 Apr 2017

Structured keywords

  • SPS Centre for Research in Health and Social Care

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