Protocol for a Global Burns Research Priority Setting Partnership to agree the most important unanswered questions in international burns care

Hollie Richards, Robert Staruch, Anni King, Catrin Pugh, Suzannah Kinsella, Jelena Savović, Amber Young

Research output: Contribution to journalArticle (Academic Journal)peer-review

2 Citations (Scopus)
32 Downloads (Pure)

Abstract

INTRODUCTION: Burns affect 11 million people globally and can result in long-term disability with substantial associated healthcare costs. There is limited research funding to support trials to provide evidence for clinical decision-making. Research prioritisation ensures that research focuses on the topics most important to stakeholders, addressing issues of research waste and evidence gaps. The aim of this project is to agree the global top 10 research priorities important to international patients, carers and clinicians from all income status countries.

METHODS AND ANALYSIS: The Global Burns Research Priority Setting Partnership will use James Lind Alliance methods to establish the top 10 research priorities in global burns care. An initial international online multilingual survey will collect candidate research priorities from stakeholders. To increase equity in participation, the survey will also be available via the social media app WhatsApp. Additionally, interviews will be conducted. Data will be analysed to identify and collate research questions and to verify that the priorities are true clinical uncertainties. This list will then be ranked by stakeholders in order of importance via a second online survey. Finally, a consensus meeting will identify the top 10 research priorities.

ETHICS AND DISSEMINATION: The University of Bristol Medical School Faculty Ethical Committee has approved this project. Research into burn care should be prioritised to ensure that funding is focused where most needed. This should be undertaken internationally, to ensure inclusion of the views of professionals and patients from lower income countries, where the incidence of thermal burns is highest. The involvement of the James Lind Alliance will ensure that the methodology is robust and that the patient voice is heard. The final top 10 priorities will be disseminated to funders, governments and researchers internationally to inform future global burns research.

Original languageEnglish
Article numbere065120
Number of pages7
JournalBMJ Open
Volume12
Issue number9
DOIs
Publication statusPublished - 14 Sept 2022

Bibliographical note

Funding Information:
This article presents independent research funded by the National Institute for Health Research (NIHR) Advanced Research Fellowship NIHR 301362. The study was also supported by the NIHR Biomedical Research Centre at the University Hospitals Bristol and Weston NHS Foundation Trust and the University of Bristol. JS was supported by the National Institute for Health Research Applied Research Collaboration West (NIHR ARC West) at University Hospitals Bristol and Weston NHS Foundation Trust.

Funding Information:
Research prioritisation ensures that research focuses on questions that are of the most potential benefit to improving outcomes. This decreases research waste and ensures the most effective use of scarce research funding. The process involves identifying and prioritising unmet research needs that are important to all relevant stakeholders. A standardised methodology for research priority setting is provided by the James Lind Alliance (JLA), which is a non-profit initiative established in 2004 and supported by the UK National Institute of Health Research. The JLA places patients, caregivers and clinicians as central stakeholders, bringing them together into Priority Setting Partnerships (PSP). These Partnerships aim to identify the top 10 most important unanswered questions and research uncertainties. The process is comprised of three phases: (1) the formation of a steering group; (2) identifying, verifying, refining and prioritising research uncertainties from stakeholders via systematic reviews, surveys and interviews and (3) final agreement through a consensus meeting to agree the top 10 research priorities.

Publisher Copyright:
© Author(s) (or their employer(s)) 2022. Re-use permitted under CC BY. Published by BMJ.

Keywords

  • Biomedical Research
  • Burns/therapy
  • Caregivers
  • Consensus
  • Humans
  • Surveys and Questionnaires

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