Recruiting to cohort studies in specialist healthcare services: Lessons learned from clinical research nurses in UK cleft services

Fabio A Zucchelli; Nichola Rumsey; Kerry Humphries; Rhiannon Bennett; Amy Davies; Jonathan R Sandy; Nicola Marie Stock

doi:10.1111/jocn.14188

Recruiting to cohort studies in specialist healthcare services: Lessons learned from clinical research nurses in UK cleft services

Fabio A Zucchelli^*, Nichola Rumsey, Kerry Humphries, Rhiannon Bennett, Amy Davies, Jonathan R Sandy, Nicola Marie Stock

^*Corresponding author for this work

Research output: Contribution to journal › Article (Academic Journal) › peer-review

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Abstract

AIM: This study aimed to explore the experiences of clinical research nurses recruiting patients in a large specialist care-based cohort study.

BACKGROUND: Longitudinal studies are vital to better understand the aetiology and moderators of health conditions. This need is especially salient for congenital conditions, such as cleft lip and/or palate, where establishing large, comprehensive datasets from birth is vital to improve understanding and to inform interventions. Various barriers exist in recruiting patients to large cohort studies. The role of clinical research nurses embedded within health settings has grown over past decades to facilitate data collection, yet challenges remain.

DESIGN: Qualitative descriptive study.

METHODS: Individual semi-structured interviews with 12 clinical research nurses based in 10 National Health Service cleft services across the United Kingdom, recruiting to the Cleft Collective Birth Cohort Study.

RESULTS: Out of seven emergent themes, three highlighted challenges to recruiting patients, another three described facilitative factors, and one theme overlapped challenges and facilitators. Challenges included: the life circumstances of potential participants; language barriers; and limited clinical research nurse time for study. Facilitative factors included: integrating research into clinical practice; patient information shared with clinical research nurses; and support from the university-based research study team. The theme 'Method of data collection' related to both challenges and facilitators.

CONCLUSIONS: The qualitative data from clinical research nurses recruiting to a large birth cohort study provide helpful practical detail for specialist healthcare teams, specialist nurses, clinical research nurses and researchers looking to optimise recruitment and data collection in longitudinal studies. This article is protected by copyright. All rights reserved.

Original language	English
Number of pages	11
Journal	Journal of Clinical Nursing
Early online date	11 Jan 2018
DOIs	https://doi.org/10.1111/jocn.14188
Publication status	E-pub ahead of print - 11 Jan 2018

Keywords

Facilitators
Qualitative approaches
Research implementation
Research in practice
Specialist nursing

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abstract = "AIM: This study aimed to explore the experiences of clinical research nurses recruiting patients in a large specialist care-based cohort study.BACKGROUND: Longitudinal studies are vital to better understand the aetiology and moderators of health conditions. This need is especially salient for congenital conditions, such as cleft lip and/or palate, where establishing large, comprehensive datasets from birth is vital to improve understanding and to inform interventions. Various barriers exist in recruiting patients to large cohort studies. The role of clinical research nurses embedded within health settings has grown over past decades to facilitate data collection, yet challenges remain.DESIGN: Qualitative descriptive study.METHODS: Individual semi-structured interviews with 12 clinical research nurses based in 10 National Health Service cleft services across the United Kingdom, recruiting to the Cleft Collective Birth Cohort Study.RESULTS: Out of seven emergent themes, three highlighted challenges to recruiting patients, another three described facilitative factors, and one theme overlapped challenges and facilitators. Challenges included: the life circumstances of potential participants; language barriers; and limited clinical research nurse time for study. Facilitative factors included: integrating research into clinical practice; patient information shared with clinical research nurses; and support from the university-based research study team. The theme 'Method of data collection' related to both challenges and facilitators.CONCLUSIONS: The qualitative data from clinical research nurses recruiting to a large birth cohort study provide helpful practical detail for specialist healthcare teams, specialist nurses, clinical research nurses and researchers looking to optimise recruitment and data collection in longitudinal studies. This article is protected by copyright. All rights reserved.",

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author = "Zucchelli, {Fabio A} and Nichola Rumsey and Kerry Humphries and Rhiannon Bennett and Amy Davies and Sandy, {Jonathan R} and Stock, {Nicola Marie}",

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AU - Humphries, Kerry

AU - Bennett, Rhiannon

AU - Davies, Amy

AU - Sandy, Jonathan R

AU - Stock, Nicola Marie

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N2 - AIM: This study aimed to explore the experiences of clinical research nurses recruiting patients in a large specialist care-based cohort study.BACKGROUND: Longitudinal studies are vital to better understand the aetiology and moderators of health conditions. This need is especially salient for congenital conditions, such as cleft lip and/or palate, where establishing large, comprehensive datasets from birth is vital to improve understanding and to inform interventions. Various barriers exist in recruiting patients to large cohort studies. The role of clinical research nurses embedded within health settings has grown over past decades to facilitate data collection, yet challenges remain.DESIGN: Qualitative descriptive study.METHODS: Individual semi-structured interviews with 12 clinical research nurses based in 10 National Health Service cleft services across the United Kingdom, recruiting to the Cleft Collective Birth Cohort Study.RESULTS: Out of seven emergent themes, three highlighted challenges to recruiting patients, another three described facilitative factors, and one theme overlapped challenges and facilitators. Challenges included: the life circumstances of potential participants; language barriers; and limited clinical research nurse time for study. Facilitative factors included: integrating research into clinical practice; patient information shared with clinical research nurses; and support from the university-based research study team. The theme 'Method of data collection' related to both challenges and facilitators.CONCLUSIONS: The qualitative data from clinical research nurses recruiting to a large birth cohort study provide helpful practical detail for specialist healthcare teams, specialist nurses, clinical research nurses and researchers looking to optimise recruitment and data collection in longitudinal studies. This article is protected by copyright. All rights reserved.

AB - AIM: This study aimed to explore the experiences of clinical research nurses recruiting patients in a large specialist care-based cohort study.BACKGROUND: Longitudinal studies are vital to better understand the aetiology and moderators of health conditions. This need is especially salient for congenital conditions, such as cleft lip and/or palate, where establishing large, comprehensive datasets from birth is vital to improve understanding and to inform interventions. Various barriers exist in recruiting patients to large cohort studies. The role of clinical research nurses embedded within health settings has grown over past decades to facilitate data collection, yet challenges remain.DESIGN: Qualitative descriptive study.METHODS: Individual semi-structured interviews with 12 clinical research nurses based in 10 National Health Service cleft services across the United Kingdom, recruiting to the Cleft Collective Birth Cohort Study.RESULTS: Out of seven emergent themes, three highlighted challenges to recruiting patients, another three described facilitative factors, and one theme overlapped challenges and facilitators. Challenges included: the life circumstances of potential participants; language barriers; and limited clinical research nurse time for study. Facilitative factors included: integrating research into clinical practice; patient information shared with clinical research nurses; and support from the university-based research study team. The theme 'Method of data collection' related to both challenges and facilitators.CONCLUSIONS: The qualitative data from clinical research nurses recruiting to a large birth cohort study provide helpful practical detail for specialist healthcare teams, specialist nurses, clinical research nurses and researchers looking to optimise recruitment and data collection in longitudinal studies. This article is protected by copyright. All rights reserved.

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Recruiting to cohort studies in specialist healthcare services: Lessons learned from clinical research nurses in UK cleft services

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