Remission in Rheumatoid Arthritis: Working Toward Incorporation of the Patient Perspective at OMERACT 12

Lilian H. Van Tuyl*, Martina Sadlonova, Bev Davis, Caroline Flurey, Niti Goel, Sarah E. Hewlett, Catherine L. Hill, Wijnanda Hoogland, John R. Kirwan, Dirkjan Van Schaardenburg, Marieke Scholte-Voshaar, Josef S. Smolen, Tanja Stamm, George A. Wells, Maarten Boers

*Corresponding author for this work

Research output: Contribution to journalArticle (Academic Journal)peer-review

17 Citations (Scopus)

Abstract

OBJECTIVE: The treatment of rheumatoid arthritis (RA) should target patient-relevant outcomes, making patient perspective on remission essential. In 2010, patients, physicians, health professionals, and researchers at the Outcome Measures in Rheumatology (OMERACT) conference developed an ambitious research agenda to study the concept of remission. Qualitative research has since helped us understand the concept of remission from the patient perspective.

METHODS: During OMERACT 12, the OMERACT working group on patient perspective on remission in RA elaborated on data generated to date and discussed the methodological challenges ahead. Challenges included (1) selection of domains, (2) choice of a patient remission definition or a single domain to add to the current remission definition, and (3) the importance of pain in defining remission from a patient perspective.

RESULTS: Focus in the coming years will be on increasing our understanding by identifying the most important domains from the patient perspective regarding remission and investigating how these domains can be measured. Investigation into the Rheumatoid Arthritis Impact of Disease questionnaire, disease flare, as well as the concordance of domains from our ongoing remission survey is appropriate. More data and further discussions are needed to decide on the next steps.

CONCLUSION: Progress summarized over 4 years highlights the main methodological challenges discussed within the working group on patient perspective on remission in RA during OMERACT 12.

Original languageEnglish
Pages (from-to)203-207
Number of pages5
JournalJournal of Rheumatology
Volume43
Issue number1
Early online date15 Feb 2015
DOIs
Publication statusPublished - 1 Jan 2016

Keywords

  • OMERACT
  • Patient perspective
  • Patient-reported outcome
  • Remission
  • Rheumatoid arthritis

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