TY - JOUR
T1 - Remission in Rheumatoid Arthritis
T2 - Working Toward Incorporation of the Patient Perspective at OMERACT 12
AU - Van Tuyl, Lilian H.
AU - Sadlonova, Martina
AU - Davis, Bev
AU - Flurey, Caroline
AU - Goel, Niti
AU - Hewlett, Sarah E.
AU - Hill, Catherine L.
AU - Hoogland, Wijnanda
AU - Kirwan, John R.
AU - Van Schaardenburg, Dirkjan
AU - Scholte-Voshaar, Marieke
AU - Smolen, Josef S.
AU - Stamm, Tanja
AU - Wells, George A.
AU - Boers, Maarten
PY - 2016/1/1
Y1 - 2016/1/1
N2 - OBJECTIVE: The treatment of rheumatoid arthritis (RA) should target patient-relevant outcomes, making patient perspective on remission essential. In 2010, patients, physicians, health professionals, and researchers at the Outcome Measures in Rheumatology (OMERACT) conference developed an ambitious research agenda to study the concept of remission. Qualitative research has since helped us understand the concept of remission from the patient perspective.METHODS: During OMERACT 12, the OMERACT working group on patient perspective on remission in RA elaborated on data generated to date and discussed the methodological challenges ahead. Challenges included (1) selection of domains, (2) choice of a patient remission definition or a single domain to add to the current remission definition, and (3) the importance of pain in defining remission from a patient perspective.RESULTS: Focus in the coming years will be on increasing our understanding by identifying the most important domains from the patient perspective regarding remission and investigating how these domains can be measured. Investigation into the Rheumatoid Arthritis Impact of Disease questionnaire, disease flare, as well as the concordance of domains from our ongoing remission survey is appropriate. More data and further discussions are needed to decide on the next steps.CONCLUSION: Progress summarized over 4 years highlights the main methodological challenges discussed within the working group on patient perspective on remission in RA during OMERACT 12.
AB - OBJECTIVE: The treatment of rheumatoid arthritis (RA) should target patient-relevant outcomes, making patient perspective on remission essential. In 2010, patients, physicians, health professionals, and researchers at the Outcome Measures in Rheumatology (OMERACT) conference developed an ambitious research agenda to study the concept of remission. Qualitative research has since helped us understand the concept of remission from the patient perspective.METHODS: During OMERACT 12, the OMERACT working group on patient perspective on remission in RA elaborated on data generated to date and discussed the methodological challenges ahead. Challenges included (1) selection of domains, (2) choice of a patient remission definition or a single domain to add to the current remission definition, and (3) the importance of pain in defining remission from a patient perspective.RESULTS: Focus in the coming years will be on increasing our understanding by identifying the most important domains from the patient perspective regarding remission and investigating how these domains can be measured. Investigation into the Rheumatoid Arthritis Impact of Disease questionnaire, disease flare, as well as the concordance of domains from our ongoing remission survey is appropriate. More data and further discussions are needed to decide on the next steps.CONCLUSION: Progress summarized over 4 years highlights the main methodological challenges discussed within the working group on patient perspective on remission in RA during OMERACT 12.
KW - OMERACT
KW - Patient perspective
KW - Patient-reported outcome
KW - Remission
KW - Rheumatoid arthritis
UR - http://www.scopus.com/inward/record.url?scp=85011891290&partnerID=8YFLogxK
U2 - 10.3899/jrheum.141113
DO - 10.3899/jrheum.141113
M3 - Article (Academic Journal)
C2 - 25684772
SN - 0315-162X
VL - 43
SP - 203
EP - 207
JO - Journal of Rheumatology
JF - Journal of Rheumatology
IS - 1
ER -