Research participation registers can increase opportunities for patients and the public to participate in health services research

Verity Leach; Sabi Redwood; Gemma Lasseter; Axel Walther; Colette Reid; Jane Blazeby; Richard Martin; Jenny Donovan

doi:10.1177/1355819615625699

Research participation registers can increase opportunities for patients and the public to participate in health services research

Verity Leach, Sabi Redwood, Gemma Lasseter, Axel Walther, Colette Reid, Jane Blazeby, Richard Martin, Jenny Donovan

Research output: Contribution to journal › Article (Academic Journal) › peer-review

2 Citations (Scopus)

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Abstract

Members of the public and patients repeatedly indicate their willingness to take part in research, but current United
Kingdom research governance involves complex rules about gaining consent. Research participation registers that seek
consent from participants to be approached about future studies have several potential benefits, including: increased
research participation across clinical and healthy populations; simplified recruitment to health care research; support for
people’s autonomy in decision making; and improved efficiency and generalizability of research. These potential benefits
have to be balanced against ethical and governance considerations. With appropriate processes in place, seeking prospective
consent from patients and members of the public to be approached about future studies could potentially
increase public participation in health research without compromising informed consent and other ethical principles.

Original language	English
Pages (from-to)	1-5
Number of pages	5
Journal	Journal of Health Services Research and Policy
DOIs	https://doi.org/10.1177/1355819615625699
Publication status	Published - 13 Jan 2016

Structured keywords

Centre for Surgical Research

Keywords

participation, prospective consent, research registers

Access to Document

10.1177/1355819615625699

Full-text PDF (accepted author manuscript)
This is the accepted author manuscript (AAM). The final published version (version of record) is available online via Sage at https://doi.org/10.1177/1355819615625699 . Please refer to any applicable terms of use of the publisher.
Accepted author manuscript, 134 KBLicence: Other

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Blazeby, J. M.
1/04/14 → 31/03/19
Project: Research

Cite this

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Research participation registers can increase opportunities for patients and the public to participate in health services research. / Leach, Verity; Redwood, Sabi ; Lasseter, Gemma; Walther, Axel; Reid, Colette; Blazeby, Jane ; Martin, Richard ; Donovan, Jenny.

In: Journal of Health Services Research and Policy, 13.01.2016, p. 1-5.

Research output: Contribution to journal › Article (Academic Journal) › peer-review

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AU - Leach, Verity

AU - Redwood, Sabi

AU - Lasseter, Gemma

AU - Walther, Axel

AU - Reid, Colette

AU - Blazeby, Jane

AU - Martin, Richard

AU - Donovan, Jenny

PY - 2016/1/13

Y1 - 2016/1/13

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ER -

Research participation registers can increase opportunities for patients and the public to participate in health services research

Abstract

Structured keywords

Keywords

Access to Document

ConDuCT-II

Cite this