Research participation registers can increase opportunities for patients and the public to participate in health services research

Verity Leach, Sabi Redwood, Gemma Lasseter, Axel Walther, Colette Reid, Jane Blazeby, Richard Martin, Jenny Donovan

Research output: Contribution to journalArticle (Academic Journal)

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Abstract

Members of the public and patients repeatedly indicate their willingness to take part in research, but current United
Kingdom research governance involves complex rules about gaining consent. Research participation registers that seek
consent from participants to be approached about future studies have several potential benefits, including: increased
research participation across clinical and healthy populations; simplified recruitment to health care research; support for
people’s autonomy in decision making; and improved efficiency and generalizability of research. These potential benefits
have to be balanced against ethical and governance considerations. With appropriate processes in place, seeking prospective
consent from patients and members of the public to be approached about future studies could potentially
increase public participation in health research without compromising informed consent and other ethical principles.
Original languageEnglish
Pages (from-to)1-5
Number of pages5
JournalJournal of Health Services Research and Policy
DOIs
Publication statusPublished - 13 Jan 2016

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Structured keywords

  • Centre for Surgical Research

Keywords

  • participation, prospective consent, research registers

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