Research participation registers can increase opportunities for patients and the public to participate in health services research

Verity Leach; Sabi Redwood; Gemma Lasseter; Axel Walther; Colette Reid; Jane Blazeby; Richard Martin; Jenny Donovan

doi:10.1177/1355819615625699

Research participation registers can increase opportunities for patients and the public to participate in health services research

Verity Leach, Sabi Redwood, Gemma Lasseter, Axel Walther, Colette Reid, Jane Blazeby, Richard Martin, Jenny Donovan

Research output: Contribution to journal › Article (Academic Journal) › peer-review

5 Citations (Scopus)

430 Downloads (Pure)

Abstract

Members of the public and patients repeatedly indicate their willingness to take part in research, but current United
Kingdom research governance involves complex rules about gaining consent. Research participation registers that seek
consent from participants to be approached about future studies have several potential benefits, including: increased
research participation across clinical and healthy populations; simplified recruitment to health care research; support for
people’s autonomy in decision making; and improved efficiency and generalizability of research. These potential benefits
have to be balanced against ethical and governance considerations. With appropriate processes in place, seeking prospective
consent from patients and members of the public to be approached about future studies could potentially
increase public participation in health research without compromising informed consent and other ethical principles.

Original language	English
Pages (from-to)	1-5
Number of pages	5
Journal	Journal of Health Services Research and Policy
DOIs	https://doi.org/10.1177/1355819615625699
Publication status	Published - 13 Jan 2016

Research Groups and Themes

Centre for Surgical Research

Keywords

participation, prospective consent, research registers

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10.1177/1355819615625699

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This is the accepted author manuscript (AAM). The final published version (version of record) is available online via Sage at https://doi.org/10.1177/1355819615625699 . Please refer to any applicable terms of use of the publisher.
Accepted author manuscript, 134 KBLicence: Other

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5 Citations
1 Article (Academic Journal)

Facilitating access to health research through a participatory research register: a feasibility study in outpatient clinics
Leach, V., Mcgeagh, J., Margelyte, R., Redmond, N., Walther, A., Redwood, S., Martin, R. & Donovan, J., 21 Jun 2017, In: Pilot and Feasibility Studies. 4, 6, 6 p.
Research output: Contribution to journal › Article (Academic Journal) › peer-review

Open Access
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2 Citations (Scopus)

412 Downloads (Pure)

1 Finished

ConDuCT-II
Blazeby, J. (Principal Investigator)
1/04/14 → 31/03/19
Project: Research

Cite this

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AU - Blazeby, Jane

AU - Martin, Richard

AU - Donovan, Jenny

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ER -

Research participation registers can increase opportunities for patients and the public to participate in health services research

Abstract

Research Groups and Themes

Keywords

Access to Document

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Research output

Facilitating access to health research through a participatory research register: a feasibility study in outpatient clinics

Projects

ConDuCT-II

Cite this