@article{7c380637d5c74939975d73f59233bca0,
title = "Research participation registers can increase opportunities for patients and the public to participate in health services research",
abstract = "Members of the public and patients repeatedly indicate their willingness to take part in research, but current UnitedKingdom research governance involves complex rules about gaining consent. Research participation registers that seekconsent from participants to be approached about future studies have several potential benefits, including: increasedresearch participation across clinical and healthy populations; simplified recruitment to health care research; support forpeople{\textquoteright}s autonomy in decision making; and improved efficiency and generalizability of research. These potential benefitshave to be balanced against ethical and governance considerations. With appropriate processes in place, seeking prospectiveconsent from patients and members of the public to be approached about future studies could potentiallyincrease public participation in health research without compromising informed consent and other ethical principles.",
keywords = "participation, prospective consent, research registers",
author = "Verity Leach and Sabi Redwood and Gemma Lasseter and Axel Walther and Colette Reid and Jane Blazeby and Richard Martin and Jenny Donovan",
year = "2016",
month = jan,
day = "13",
doi = "10.1177/1355819615625699",
language = "English",
pages = "1--5",
journal = "Journal of Health Services Research and Policy",
issn = "1355-8196",
publisher = "SAGE Publications Ltd",
}