Self-management for people with poorly controlled epilepsy: Participants' views of the UK Self-Management in epILEpsy (SMILE) program

Anne H Laybourne; Myfanwy Morgan; Sarah H Watkins; Rebecca Lawton; Leone Ridsdale; Laura H Goldstein

doi:10.1016/j.yebeh.2015.08.023

Self-management for people with poorly controlled epilepsy: Participants' views of the UK Self-Management in epILEpsy (SMILE) program

Anne H Laybourne, Myfanwy Morgan, Sarah H Watkins, Rebecca Lawton, Leone Ridsdale, Laura H Goldstein

Research output: Contribution to journal › Article (Academic Journal) › peer-review

21 Citations (Scopus)

Abstract

BACKGROUND: Epilepsy is a long-term condition that requires self-management, but currently, there is no well-evaluated epilepsy self-education or self-management intervention in the United Kingdom (UK).

AIM: The aim of this study was to examine the views and experiences of the first participants of the Self-Management in epILEpsy UK (SMILE UK) program to assist the development of a full trial.

METHOD: In-depth semistructured interviews and group discussions were conducted with 10 people with poorly controlled epilepsy to explore their views and experiences of the self-management program. Interviews were audio-recorded, transcribed, and analyzed thematically.

RESULTS: All participants viewed the program positively. Three themes emerged: i) peer support was experienced through knowledge sharing, disclosure of experiences, and exchange of contact details; ii) participants felt better equipped to enter discussions with doctors and other health-care professionals about their condition; and iii) participants reported an improvement in their personal life through increased confidence to live with epilepsy and acceptance of their diagnosis.

CONCLUSION: A brief group self-management intervention increased knowledge and confidence in managing epilepsy.

Original language	English
Pages (from-to)	159-164
Number of pages	6
Journal	Epilepsy and Behavior
Volume	52
Issue number	Pt A
DOIs	https://doi.org/10.1016/j.yebeh.2015.08.023
Publication status	Published - 28 Sept 2015

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@article{99f34d81448d42bdadc7ede2d723a972,

title = "Self-management for people with poorly controlled epilepsy: Participants' views of the UK Self-Management in epILEpsy (SMILE) program",

abstract = "BACKGROUND: Epilepsy is a long-term condition that requires self-management, but currently, there is no well-evaluated epilepsy self-education or self-management intervention in the United Kingdom (UK).AIM: The aim of this study was to examine the views and experiences of the first participants of the Self-Management in epILEpsy UK (SMILE UK) program to assist the development of a full trial.METHOD: In-depth semistructured interviews and group discussions were conducted with 10 people with poorly controlled epilepsy to explore their views and experiences of the self-management program. Interviews were audio-recorded, transcribed, and analyzed thematically.RESULTS: All participants viewed the program positively. Three themes emerged: i) peer support was experienced through knowledge sharing, disclosure of experiences, and exchange of contact details; ii) participants felt better equipped to enter discussions with doctors and other health-care professionals about their condition; and iii) participants reported an improvement in their personal life through increased confidence to live with epilepsy and acceptance of their diagnosis.CONCLUSION: A brief group self-management intervention increased knowledge and confidence in managing epilepsy.",

author = "Laybourne, {Anne H} and Myfanwy Morgan and Watkins, {Sarah H} and Rebecca Lawton and Leone Ridsdale and Goldstein, {Laura H}",

year = "2015",

month = sep,

day = "28",

doi = "10.1016/j.yebeh.2015.08.023",

language = "English",

volume = "52",

pages = "159--164",

journal = "Epilepsy and Behavior",

issn = "1525-5050",

publisher = "Elsevier Inc.",

number = "Pt A",

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TY - JOUR

T1 - Self-management for people with poorly controlled epilepsy

T2 - Participants' views of the UK Self-Management in epILEpsy (SMILE) program

AU - Laybourne, Anne H

AU - Morgan, Myfanwy

AU - Watkins, Sarah H

AU - Lawton, Rebecca

AU - Ridsdale, Leone

AU - Goldstein, Laura H

PY - 2015/9/28

Y1 - 2015/9/28

N2 - BACKGROUND: Epilepsy is a long-term condition that requires self-management, but currently, there is no well-evaluated epilepsy self-education or self-management intervention in the United Kingdom (UK).AIM: The aim of this study was to examine the views and experiences of the first participants of the Self-Management in epILEpsy UK (SMILE UK) program to assist the development of a full trial.METHOD: In-depth semistructured interviews and group discussions were conducted with 10 people with poorly controlled epilepsy to explore their views and experiences of the self-management program. Interviews were audio-recorded, transcribed, and analyzed thematically.RESULTS: All participants viewed the program positively. Three themes emerged: i) peer support was experienced through knowledge sharing, disclosure of experiences, and exchange of contact details; ii) participants felt better equipped to enter discussions with doctors and other health-care professionals about their condition; and iii) participants reported an improvement in their personal life through increased confidence to live with epilepsy and acceptance of their diagnosis.CONCLUSION: A brief group self-management intervention increased knowledge and confidence in managing epilepsy.

AB - BACKGROUND: Epilepsy is a long-term condition that requires self-management, but currently, there is no well-evaluated epilepsy self-education or self-management intervention in the United Kingdom (UK).AIM: The aim of this study was to examine the views and experiences of the first participants of the Self-Management in epILEpsy UK (SMILE UK) program to assist the development of a full trial.METHOD: In-depth semistructured interviews and group discussions were conducted with 10 people with poorly controlled epilepsy to explore their views and experiences of the self-management program. Interviews were audio-recorded, transcribed, and analyzed thematically.RESULTS: All participants viewed the program positively. Three themes emerged: i) peer support was experienced through knowledge sharing, disclosure of experiences, and exchange of contact details; ii) participants felt better equipped to enter discussions with doctors and other health-care professionals about their condition; and iii) participants reported an improvement in their personal life through increased confidence to live with epilepsy and acceptance of their diagnosis.CONCLUSION: A brief group self-management intervention increased knowledge and confidence in managing epilepsy.

U2 - 10.1016/j.yebeh.2015.08.023

DO - 10.1016/j.yebeh.2015.08.023

M3 - Article (Academic Journal)

C2 - 26426353

SN - 1525-5050

VL - 52

SP - 159

EP - 164

JO - Epilepsy and Behavior

JF - Epilepsy and Behavior

IS - Pt A

ER -

Self-management for people with poorly controlled epilepsy: Participants' views of the UK Self-Management in epILEpsy (SMILE) program

Abstract

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