The administrative load of sharing sensitive data - challenges and solutions?

Kirsty Merrett; Zosia Beckles; Stephen Gray; Debra Hiom; Kellie Snow; Damian Steer

The administrative load of sharing sensitive data - challenges and solutions?

Kirsty Merrett, Zosia Beckles, Stephen Gray, Debra Hiom, Kellie Snow, Damian Steer

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Research output: Contribution to conference › Conference Paper › peer-review

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Abstract

Sharing data openly has become a straightforward process at the University of Bristol. The University’s top funders mandate or recommend data sharing as a condition of funding, and many publishers require access to research data to enable results of published articles to be verified. The University has provided a dedicated data repository to support this since 2015, and demand for open publication has risen steadily since its inception. However, an increasing number of requests for sharing data relate to data that has ethical, legal or commercial sensitivities and so cannot be published openly.

Rather than discuss the wide-ranging ethical implications of data sharing, this
practice paper will focus on the secure sharing of sensitive data that has ethical approval and, where required, has the necessary consent in place, from the perspective of an institution that has already decided to undertake the work inherent in sharing sensitive data. The specific purpose is to detail the workflow and administrative tasks integral in this and to highlight the types of challenges encountered.

Original language	English
Number of pages	11
Publication status	Published - 19 Feb 2018
Event	International Digital Curation Conference (IDCC): "Beyond FAIR - from principles to practice to global join up" - NH Collection Barcelona Tower, Barcelona, Spain Duration: 19 Feb 2018 → 22 Feb 2018 Conference number: 13 http://www.dcc.ac.uk/events/idcc18

Conference

Conference	International Digital Curation Conference (IDCC)
Abbreviated title	IDCC 2018
Country/Territory	Spain
City	Barcelona
Period	19/02/18 → 22/02/18
Internet address	http://www.dcc.ac.uk/events/idcc18

Keywords

Research Data Management
data publication
data sharing
sensitive data
administration

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This is the author accepted manuscript (AAM). The final published version (version of record) was presented at the 13th International Digital Curation Conference (http://www.dcc.ac.uk/events/idcc18) . Please refer to any applicable terms of use of the conference organiser.
Accepted author manuscript, 283 KBLicence: CC BY

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@conference{5706bf92e6f24e3cab0e5a0e84ad6812,

title = "The administrative load of sharing sensitive data - challenges and solutions?",

abstract = "Sharing data openly has become a straightforward process at the University of Bristol. The University{\textquoteright}s top funders mandate or recommend data sharing as a condition of funding, and many publishers require access to research data to enable results of published articles to be verified. The University has provided a dedicated data repository to support this since 2015, and demand for open publication has risen steadily since its inception. However, an increasing number of requests for sharing data relate to data that has ethical, legal or commercial sensitivities and so cannot be published openly.Rather than discuss the wide-ranging ethical implications of data sharing, thispractice paper will focus on the secure sharing of sensitive data that has ethical approval and, where required, has the necessary consent in place, from the perspective of an institution that has already decided to undertake the work inherent in sharing sensitive data. The specific purpose is to detail the workflow and administrative tasks integral in this and to highlight the types of challenges encountered.",

keywords = "Research Data Management, data publication, data sharing, sensitive data, administration",

author = "Kirsty Merrett and Zosia Beckles and Stephen Gray and Debra Hiom and Kellie Snow and Damian Steer",

year = "2018",

month = feb,

day = "19",

language = "English",

note = "International Digital Curation Conference (IDCC) : {"}Beyond FAIR - from principles to practice to global join up{"}, IDCC 2018 ; Conference date: 19-02-2018 Through 22-02-2018",