The Meaning of ‘choice and control’ for People with Intellectual Disabilities who are Planning their Social Care and Support

Val J Williams, Susan M Porter

Research output: Contribution to journalArticle (Academic Journal)peer-review

21 Citations (Scopus)
316 Downloads (Pure)

Abstract

Background

This paper questions consumerist assumptions in current English social care policy and aims to look behind the processes of personalization to interrogate what ‘choice and control’ means in the lives of a diverse group of people with intellectual disabilities.

Methods

Data were from multiple interviews and direct practice recordings with nine people using personal budgets and were analysed using an interpretative approach.

Results

Identity, other people and personal budget processes were all important for choice and control. People needed to build confidence in themselves as decision-makers, both through peer support and through joint decisions with trusted others.

Conclusions

Practitioners need to take into account the spectrum of ways in which people may make decisions. Action needs to be taken both at the micro level of support interactions and at the macro level, with a clearer articulation of independent living in policy and strategy for people with intellectual disabilities.
Original languageEnglish
Pages (from-to)97–108
Number of pages12
JournalJournal of Applied Research in Intellectual Disabilities
Volume30
Issue number1
Early online date25 Oct 2015
DOIs
Publication statusPublished - Jan 2017

Keywords

  • autonomy
  • choice and control
  • intellectual disability
  • personal budgets
  • relational autonomy
  • support planning

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