Abstract
The UN Convention on the Rights of Persons with Disabilities (UNCRPD) has implications for the use of law with people living with dementia. This systematic review identifies how decisions to deprive people living with dementia of their liberty, using domestic mental capacity and mental health laws, are understood and made by professionals, and are experienced by people living with dementia and their carers. Database searches of Scopus, IBSS, CINAHL, PubMed, HMIC, and Social Policy and Practice were conducted to identify relevant academic and grey literature, with final searches in July 2024. No geographical or time scale restrictions were applied. Studies not written in English were excluded. Study quality was assessed using the Mixed Methods Appraisal Tool and thematic synthesis was used to organise data. The study was funded by Avon and Wiltshire Mental Health Partnership (grant number SP1200) and is registered on Prospero (CRD42023483046). Eleven studies were selected for review. Six papers were qualitative, three were quantitative and two employed mixed methods. Eight studies were based within the UK and all studies were conducted in Europe. Key themes were (1). Levels of legal understanding amongst stakeholder groups. (2). The influence of professional background on decision-making in dementia detention cases. (3). The impact of the severity of dementia and dementia diagnosis on decision-making. (4). The impact of care setting on decision-making. (5). The experiences of carers during decision-making. (6). The exclusion of people living with dementia during decision-making. Limitations are that not enough studies were identified to provide a meta-synthesis, non-English texts were excluded and that we did not specifically search for articles relating to guardianship laws. Our study identified significant gaps between the ideals of the UNCRPD and practice in health and social care settings.
| Original language | English |
|---|---|
| Article number | 14713012251367810 |
| Number of pages | 20 |
| Journal | Dementia |
| Early online date | 15 Aug 2025 |
| DOIs | |
| Publication status | E-pub ahead of print - 15 Aug 2025 |
Bibliographical note
Publisher Copyright:© The Author(s) 2025. This article is distributed under the terms of the Creative Commons Attribution 4.0 License (https://creativecommons.org/licenses/by/4.0/) which permits any use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access page (https://us.sagepub.com/en-us/nam/open-access-at-sage).
Research Groups and Themes
- SPS Centre for Research in Health and Social Care
Keywords
- dementia
- UNCRPD
- mental capacity
- mental health law
