Trackly: A Customisable and Pictorial Self-Tracking App to Support Agency in Multiple Sclerosis Self-Care

Amid Ayobi, Paul Marshall, Anna L. Cox

Research output: Chapter in Book/Report/Conference proceedingConference Contribution (Conference Proceeding)

45 Citations (Scopus)
349 Downloads (Pure)


Self-tracking is an important part of self-care. However, predefined self-tracking approaches can impede people’s agency in managing their health. We investigated a customisable and pictorial self-tracking approach in multiple sclerosis self-management by implementing and conducting a field study of Trackly: a prototype app that supports people in defining and colouring pictorial trackers, such as body shapes. We found that participants utilised the elements of Trackly designed to support agentive behaviour: they defined personally meaningful tracking parameters in their own words, and particularly valued being able to flexibly colour in and make sense of their pictorial trackers. Having been able to support their individual self-care intentions with Trackly, participants reported a spectrum of interrelated experiences of agency, including a sense of ownership, identity, self-awareness, mindfulness, and control. Our findings demonstrate the importance of supporting people’s individual needs and creative capacities to foster mindful and personally meaningful engagement with health and wellbeing data.
Original languageEnglish
Title of host publicationProceedings of the 2020 CHI Conference on Human Factors in Computing Systems (CHI '20)
Place of PublicationHonolulu, HI, USA
PublisherAssociation for Computing Machinery (ACM)
Number of pages15
ISBN (Print) 978-1-4503-6708-0
Publication statusPublished - 1 Apr 2020
EventACM SIGCHI: CHI'20 - Hawaii, Honolulu , United States
Duration: 24 Apr 202030 Apr 2020

Publication series

NameProceedings of the SIGCHI Conference on Human Factors in Computing Systems
PublisherAssociation for Computing Machinery


ConferenceACM SIGCHI: CHI'20
Abbreviated titleCHI'20
Country/TerritoryUnited States

Structured keywords

  • Digital Health


  • self-tracking
  • symptom monitoring
  • mood tracking
  • bullet journaling
  • customization
  • customisation
  • agency
  • perceived control
  • self-reflection
  • self-awareness
  • mindfulness


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