"Ur skin is the thing that everyone sees and you cant change it!": exploring the appearance-related concerns of young people with psoriasis

Fiona E Fox, Nichola Rumsey, Marianne Morris

Research output: Contribution to journalArticle (Academic Journal)peer-review

48 Citations (Scopus)

Abstract

PURPOSE: The failure of research to capture the qualitative experiences of young people who have chronic skin conditions means that their psychosocial needs are poorly understood. Using a grounded theory approach, this study facilitated group discussions between adolescents with psoriasis in order to rapidly identify themes about their support needs.

METHODS: Three online focus groups were hosted in a real time forum. In total, 8 young people aged 11-18 years were recruited through the websites of psoriasis support organizations. Focus groups lasted an average of 1 hour and data was analysed using grounded theory techniques.

RESULTS: Appearance-related concerns are central to the experiences of young people with psoriasis. Participants constructed their individual struggle (It and Me) in physical, emotional, motivational and intellectual terms. A strong sense of Us developed as participants recognized the value of meeting peers with psoriasis. This enabled groups to blame Them for their negative social experiences.

DISCUSSION: The findings are discussed in the context of literature around adolescence and appearance. It is suggested that the experience of negative social encounters in adolescence may have long-term implications for appearance anxiety specifically and self-esteem generally. The potential of peer support to improve these outcomes is considered.

Original languageEnglish
Pages (from-to)133-41
Number of pages9
JournalDevelopmental neurorehabilitation
Volume10
Issue number2
Publication statusPublished - 11 Aug 2007

Keywords

  • Adolescent
  • Body Image
  • Child
  • Female
  • Focus Groups
  • Humans
  • Male
  • Peer Group
  • Psoriasis
  • Psychology, Adolescent

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