Varied & Bespoke Caregiver needs: Organizing and communicating diabetes care for children in the DIY Era

Aisling Ann O'Kane, Yi Han, Rosa I. Arriaga

Research output: Chapter in Book/Report/Conference proceedingConference Contribution (Conference Proceeding)

3 Citations (Scopus)

Abstract

Type 1 diabetes in children is a complex chronic condition. It requires high levels of coordination in order to communicate and organize care for best health outcomes. We examined three types of care, at home, at school, and at the clinic, to explore the communication needs of a range of caregivers. Not only were there differences between types of caregiver, but there were also varied personal preferences for communication, different levels of knowledge regarding caregiving that required different forms of communication, and changes in child health leading to different care needs and communication styles. We frame these findings within the new trend of diabetes technologies that allow for cloud connected communication in order to show the need to respect varied and individual communication practices. Technologies that link current health data over the cloud may not have a one-size-fits-all solution for all caregivers, however, open-source DIY health trends may be a way towards supporting personalized communication needs.

Original languageEnglish
Title of host publicationPervasiveHealth 2016 - 10th EAI International Conference on Pervasive Computing Technologies for Healthcare
PublisherICST Institute for Computer Sciences, Social-Informatics and Telecommunications Engineering
Volume2016-May
ISBN (Electronic)9781631900501
DOIs
Publication statusPublished - 16 Jun 2016
Event10th EAI International Conference on Pervasive Computing Technologies for Healthcare, PervasiveHealth 2016 - Cancun, Mexico
Duration: 16 May 201619 May 2016

Conference

Conference10th EAI International Conference on Pervasive Computing Technologies for Healthcare, PervasiveHealth 2016
CountryMexico
CityCancun
Period16/05/1619/05/16

Keywords

  • Caregivers of children
  • Chronic care
  • Cloud
  • Communication
  • DIY health
  • Healthcare
  • ICT
  • IOT
  • Type 1 diabetes

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