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Making a difference - the impact of the Confidential Inquiry into premature deaths of people with learning disabilities

Research output: Contribution to journalArticle

Original languageEnglish
Pages (from-to)142-149
Number of pages8
JournalBritish Journal of Learning Disabilities
Volume43
DOIs
DatePublished - May 2015

Abstract

The Confidential Inquiry into premature deaths of people with learning disabilities (CIPOLD) was commissioned by the Department of Health in England in 2010 to investigate the avoidable or premature deaths of people with learning disabilities through retrospective reviews of deaths.
Both the process of conducting CIPOLD and the findings of the study itself made an impact on the way in which professionals thought about issues relating to people with learning disabilities and led to changes in policy and practice. Much of the impact of CIPOLD came from arming practitioners, family carers, people with learning disabilities and policy makers with the research findings and encouraging them to take on the mantle of change from there, for example, by increasing the provision of training or reviewing their current practice. There were a number of challenges that the research team faced. First, they needed to ensure the assiduous recording of any impact that took place throughout the duration of the research and beyond. Secondly, they were careful to make sure that as far as possible, professionals were involved and that it was a learning experience for them from which they had something to gain. Thirdly, self-reflexivity on the part of the research team was required in order for them to
understand where their own strengths and limitations lay.

    Research areas

  • learning disabilities, impact, premature deaths

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